Mom has been discharged and transferred to the nursing center!!! Finally!!! After 3 days she has been moved! I have started the countdown until she is home. yup, I am counting down the days. She was asleep when I got there but she woke up a bit just when I was about to sit on the chair. Her lunch was delivered and ready for her. She had to go to the bathroom so I help as best as I could after I hit the nurses call button. After that, I fed her lunch and she ate pretty okay. The nursing center knows that she may need help with eating and dressing. I also let them know that she is very frightened over all the changes that have been made for her. She doesn't really have a clue where she is, all she knows is that when she calls my name, I am not there and that frightens her because we are together all the time. Every day, all day, she is with me. Rarely do I have someone watch her for me because usually I can bring her with me so I do. It has been a strange week without her around. I don't really like sleeping in the house all by myself but I am getting used to it. It just is strange for the both of us.

Mom's roommate is very nice. She has a broken knee so she will be there a while for physical therapy too. I forgot to pack Mom's toothbrush and hairbrush. Oops. I will bring them tomorrow. I had so many papers to fill out it was unbelievable, simply unbelievable. I would say there was at least 25 to 30 pieces of paper I had to sign for her. Mom slept through the end of it. When I left she was out like a light so I didn't wake her. She said her eyes even hurt from being so tired. She is just plain exhausted, completely exhausted. I expect her to sleep a lot this week there. At least she won't be woken up every 2 hours to be turned. The nurses have cream to put on her bottom. I didn't sign her up for the phone or the TV because she wouldn't know how to use either anyways, so why bother pay for something she isn't going to use? That would be silly and stupid and a waste of good money when we have bills that need to be paid. I am thankful that medicare pays 100% up to 20 days and since Mom will only be there for 14 days, it is paid for. We don't have the money for the co-pay after that, but we won't need it so it doesn't even matter. Mom will be home and I will be a happy camper. So will Mom. I think she will be happy to go home.

Pain is a bit high today. Not really sure why. I am not as tired as I was earlier today, I got up just in time for Katie's lesson. I set the alarm for the wrong time, but we fit the lesson in and that is what counts. She is doing well and is learning some new music. She has a book that has one of my favorite songs in it!!!! Red as the rose!!! It is an old Irish song that I heard about 10 years ago. I have been looking for that song ever since and Katie has it! I am so excited about that. She is going to make me a copy of it and the CD. How cool is that? Pretty cool, I'd say! I am planning to give that to Lily, I think she will love the song.

It is a bit hot outside, but a nice change from freezing all winter. I did have to turn the A/C up a bit as it was cold in the house. This new thermostat keeps the temp a bit different than the old one which I think wasn't giving us the proper temp anyways.

I hope this finds you doing well and enjoying the holiday weekend!

Mom is delayed again for her discharge. It is now tomorrow, Sunday. They didn't give her the medicine she needed last night to clear up her issue, so they gave it to her today. I know, because I was there when she took it. She ate pretty good for lunch, she finished all her beans and her rice. She ate 1/2 of the pudding (it was a boost pudding) and 1/3 of her chicken and gravy. She drank 7 oz of her apple juice, it had some medicine in it too. Overall, I am disappointed they didn't give it too her yesterday, she usually needs some help with this issue, but hey, it is fixed now. I plan to be there at 11:00 tomorrow so maybe I will see the doctor although, I imagine she has to have a day off sometime. I hope Mom goes to the nursing center tomorrow so I can start my countdown until she is home. I am not going to call Richard or Andrew for an update today because I have nothing really to say except it is moved to tomorrow. I will call them as soon as she is placed. She fell asleep after lunch and the medicine and her walk. Physical Therapy came to see her and they took her up and down the hall. She did really well. She cooperated with them and everything. I was pleased. I think she will cooperate with physical therapy at the nursing center. I remembered to bring her undies today. I put them in the suitcase and the blue bag. There is a blue bag missing with Mom's little red jacket in it. I left the nurses station now because it is a really good little jacket for mom. I don't want to lose it, although if I have to buy another I will. It's just this one is lined with sweatshirt material and has a hood on it in case it rains. Mom really likes it. I hope they find it. I am sure they will. I knew I should have brought it home on Thursday when I saw it. Stupid me. Then I would for sure have it. They moved her room again and the jacket didn't go with her, that is why I am worried about it. I looked in the old room's cupboard and it wasn't there so I am not sure where it went. I wish I knew where we got it from. Her blue one isn't as nice as this one because it isn't as warm. Her gray hoodie fits underneath it too which it doesn't under the blue one. I am hopeful they find it.

Pain is a bit higher in the head today and the hands. The weather is beautiful though, nice and sunny and not too hot or humid. I don't have many plans today except to read a bit and fiddle around online. I am going to do some laundry too, I am running out of t-shirts to wear again, need to buy some more too. I have several I can't wear anymore due to stains. I want to purchase four new t-shirts for the summer.

I don't have any special plans for the holiday weekend. Everything depends on the Mom. We were supposed to go to my Uncle's tomorrow, but of course, I had to cancel that. We will reschedule as soon as Mom is home and feeling better. She likes going to see her little brother and I think he enjoys seeing her even if she falls asleep in the afternoon at his house. He didn't mind. He knows the scoop on her condition, he just wants to spend as much time with her as he can while he can. I know the feeling. I want to make sure her last whatever, (months, weeks, days, years, etc) are happy ones for her. She deserves it, she has had a hard life at times.

I hope this finds you doing well and having a great weekend! Enjoy the nice weather if you have it!

Mom will not be discharged today, but tomorrow. She has a bit of a constipation problem and apparently the nursing home would send her right back into the hospital for that. That would not be good. The doctor ordered some medicine to take care of the issue tonight, so that is good. I am to be at the hospital by noon to sign her papers. I have her suitcase ready except for her undies. Apparently, the disposable undies are causing her a problem and the nurse has asked for regular undies for her. I will wash and bring them to her. I miss her being here. I know we don't talk all day like we used, she isn't capable of being that verbal, but I miss her presence. Fortunately, I know she is in good hands and will be moving to good hands so that keeps me going. I am anxious to have her home, but at the same time I want her stronger and if physical therapy for her is better in the home right now, then that is where she will go. I do plan to visit everyday so that she doesn't get too lonely and feel afraid. After she is discharged from the nursing home I will have a plan in place to make sure I focus on hydrating her so this doesn't happen again. She ate pretty well at lunch. I fed her some macaroni and cheese and pudding and it looked like she ate some fruit and mashed potatoes before I got there. She has a bottle of water by her bed too. The nurses aid said every time she comes in to turn Mom she gets her to drink a bit of the water, plus she is still hooked up to the IV. Everything is going pretty well for her, despite the little hiccup in the plan. I have tomorrow off now so I can devote the entire afternoon to Mom's settling in at the home.

I did speak to Andrew, he didn't get any of my messages. I gave him the update and said I would call if there were any changes to the plan. I spoke to Richard too and he said to call as soon as she is placed tomorrow so I will. I am much more confident about Mom's condition now that she is doing better and almost ready to come home. Once Mom is home I plan to have her eat of drink something every hour during the day so this doesn't happen again. Apparently, every 2 to 3 hours clearly isn't good enough. I gave the update to my Uncle John too. We were supposed to go to his house on Sunday, but obviously, we aren't going. We will go once Mom is home and better. She will enjoy the visit with her brother.

I am enjoying the peace and quiet of the house now. I didn't the last time I had the house to myself, but this time I am. Tillie will be over next week for a bit and then before I know it, Mom will be home. I just read and watched a bit of TV last night before chatting with my friend, Karlyn and my cousin, Hayley. Karlyn has been a great help to me over this whole event. She has chatted with me on face book almost every night, listening to my fears, which are pretty much gone now. She has 2 girls and 1 boy and I have their Christmas picture, they are very very cute. Julianne and Alexis sent me messages via their mom too. I mean, how sweet can you get? They are very compassionate little girls.

Pain level is normal with a bit of a headache. Don't really know why I have more of a headache than usual because it isn't raining, it is beautiful outside. It isn't too humid or muggy out either. Who knows? FMS is a strange disease and does strange things to a body, that's all I know. I think I will take another pain pill and then my student should be here shortly. It has been a quiet day.

Mom will be discharged from the hospital tomorrow! Yeah! She is doing better today! Yesterday was just a bad day for her. I don't know why, but today is better. She will be transferring to a nursing home for 2 weeks, then she will come home to me! I can't wait for that. I miss her when she isn't around. I know she misses me. While I was there, Physical Therapy came by to see her and they got her up out of bed and using a walker, out for a walk. She did have to take a detour to the bathroom, but then she went for a walk. How exciting. Yesterday, I thought I was at the end for her, but now it seems she has rallied a bit and is back to doing how she was before she went into the hospital. I do realistically realize that this may happen again since eating and drinking are very hard for her, but I can deal with it as it comes. I feel much stronger today, but I wasn't yesterday. Today, I can handle anything that is handed to me, yesterday, not so much. I have a good support system so that is good. I do have some laundry to do for her because I don't have enough clean for her so I can pack a suitcase for her to take to the nursing home for her. I, fortunately, have enough clean tee shirts and sweats for her and socks, however, her pair of jeans are dirty as well as her pajamas. I want her to look cute as she is having her physical therapy for the next 2 weeks. Thank goodness we found her clothes. There are some in the spare room too. I will pack later this afternoon and put the suitcase in the front hall so I don't forget to bring it to her tomorrow. I have papers to sign for her tomorrow since Mom can't really sign for herself. I am her patient advocate and her power of attorney person. I will take good care of her. I will be counting down the days until she comes home though, since I miss her so much. I will also enjoy the break from the day to day grind of taking care of her. I plan to put some stargate in this afternoon to watch. I love that show.

I am having such a good day, pain is down and Mom is doing well! What could be better (outside of Mom being home with me having a good day)?

If Richard wants to come and visit now, that would be fine, but I don't feel the need for him to be here. With Mom doing good and going to a new place tomorrow, I think she is on the road to recovery as much as she can. She probably will know him right now if he comes. She seems to know who he is when I talk about him and the family, so that is a good thing.

It is warm outside today. The sun is shining although a possible storm later this afternoon.

Mom isn't doing as well as she did yesterday. I don't know if it is because she was all alone all day (I was in Lansing for the day so I didn't arrive until 5:00 pm) or just a regular bad day for her. She didn't eat or drink very much. Thank goodness she has an IV! That keeps her hydrated. She doesn't appear to be in pain so I am very happy about that. We didn't stay long as I have a bad headache tonight. I will be heading to bed early. Two nights without much sleep are creeping up on me. I have to get up early again tomorrow because of my blood test at 11:00 am. Yuck! I wish I could reschedule but it is too late for that. I will go and get it down and then it will be over for 2 weeks or perhaps a month. We shall see. Mom should be going to a rehab hospital for a couple weeks after she leaves the hospital which could be in a couple of days depending on how she is doing. Basically, the bottom line is this is the beginning of her end. I can't believe it, I am not ready for it, but from what I have read (and I have read a lot about this disease) she is nearing the end. The plan is to bring her home, but I don't know for how long. It is a wait and see. I will be moving a bed into the living room for her because I don't expect her to be too mobile. I will be getting her a couple of nightgowns to wear because they will be easier for her to wear than pants. I am not happy about this, but I have been expecting it since she first stopped eating properly last February. I guess I can forget about bringing her to Chicago for the competition, we won't be attending. My goal is to make sure her last few months or weeks or whatever are comfortable and pleasant for her. She won't really know where she is so I am not worried about her being upset that she isn't at home. Mom was upset when she didn't know where I was this afternoon because she is used to me being with her at all times. After a few minutes, she was fine. She did cry tonight when I left so I kissed her, told her I loved her, and left the room. Tillie changed the subject to get her to stop crying and then left also.

My head is really sore tonight. I am not stressed about what is happening which is actually kind of weird, nor have I cried yet. I mean, I am watching my mom die slowly. I just don't want her in pain. This is the hardest thing I have ever done. Ever. She has been with me day in and day out for 4 years straight and we hung out a lot together for years before that. I don't know exactly what I will do without her, but I know I have a lot to figure out. I just don't know right now, now that it is facing me. I have called my older brother to ask if he can come now, but he didn't answer the phone (as usual - he rarely answers his phone, especially if it is me). I think he should come now and not wait until summer because I don't expect Mom to be here at the end of the summer. I could be wrong and she could rally! I pray she does, I am not ready for this. Not one bit. I hope to sleep well tonight or at least as well as I can. I don't want to ache more on top of all this.

Mom is in the hospital. I took her to the ER yesterday afternoon. Maia was with me. We were at Tim Horton's and she kept having a sore throat that would come and go. It happened at home and I tried to give her some pain medicine. I have it in liquid form, but she said it burned going down. I stopped giving her the medicine then because I don't want her to have a burning throat. It stopped hurting and we left. While we were at Tim Horton's, she grabbed her throat again because it hurt again. Also, every time she drank something, no matter what it was, she coughed. We took her right from there. We had to wait a bit in the waiting room (about 2 hours) because they were so busy and there were so many people waiting for beds upstairs in the hospital. When we got in Maia and I told the doctor everything that was happening, including the headache from Saturday. He looked into her throat and said she was very dehydrated, that was what was causing the pain. He sent for several X-Rays, CT scan, blood tests, and urine test. We left at about 8:30 pm to come home because the nurse had no idea when Mom would be sent upstairs to a bed. She was so tired. She was awake the whole time in the ER. We finally we able to get her some pain killers to help with the pain after the last test (the CT scan). She doesn't seem to be in any pain today. She looks so much better than she did yesterday and she can speak much clearer than she could yesterday. She also can put into words more of what she wants to say. She did eat a good breakfast of cream of wheat and an omelet. She had a good lunch, we were there for that one. I am hoping she has a good dinner, although I won't be there for that because I do have a few lessons to teach today. Overall, I am glad we brought her in because I think she could have died from this. Slowly over time, she is starving and dehydrating herself, not on purpose, but because her body is forgetting how to do things. She does tear up every time they move her because she is scared of falling. She is afraid when they stand her up for any reason, but then she calms down right away. I saw the Physician's Assistant this afternoon. I will miss the doctor because of lessons. I will find out what the doctor has to say when I go back this evening. Maia is planning to come to stay with her tomorrow while I am in Lansing for the day. I took Maia to the bus stop so she could take her groceries home to her family. She is coming back tomorrow. Tillie is on her way now and should be here soon. I am hoping that this visit will put some spring back into her step and bring her back to where she was a few months ago. That is my hope. I do know this could happen again with her because of the disease, but I am hoping to keep ahead of it. I am staying rather calm over this whole thing because she is doing so much better. I hope to have her home in a few days. I don't know how long they are going to keep her. At least until tomorrow, I think. I would imagine a few days at least to give her body time to adjust to the hydration she is receiving. It doesn't appear that she is going to need a feeding tube put into her at this time. That was something the doctor mentioned in the ER, that that may be a possibility. hey, if that was what she needs, we will deal with that, no problem. But I am glad that it doesn't seem to be something she is going to need. She was feeding herself mostly. I fed her a bit and she did the rest.

Pain isn't too bad although I didn't sleep much at all last night because I ran out of my sleep medicine and forgot to go and get more. I will fix that this evening. No way am I having 2 nights of no sleep and having to drive to Lansing tomorrow. That would be a bad combination. Very bad combination. My head is not too bad, i am just a bit more tired than normal. I am getting up early tomorrow so I will be heading to bed early both because of no sleep last night and the early morning tomorrow.

I will update as soon as there is something to update.

What a wonderful, fun-filled day! We had a really good time. First up was an earlier than usual morning for the Mom and me. We went to Calli's baptism and it was a really nice service. I think Mom enjoyed the music a lot. It was a contemporary service with Praise and Worship music. Heather B-T's mom sat with us. She and Mom are good friends, well as good as a friend as Mom can be at this point, but I know Mom really likes her because she has mentioned it before. Then after the service was a nice little BBQ at the church social hall. Burgers and Hot Dogs. They were very yummy. Calli sat with us to eat and so did Pat (Heather B-T's Mom). Mom wasn't walking so good, so the church has a walker with a seat. We put Mom in it and Heather's brother, James, took her into the social hall. It was very helpful for the little person. She is just having a day with the walking. It is just one of those days. We stayed until the end, Mom even stayed awake during the whole thing, so you can imagine how tired the little one is. She is having trouble with steps today, but I did manage to get her up and down the steps as needed during the day. When we got home we both went into the living room and took a wee nap. I slept for about an hour, and she is still sleeping. She is exhausted from our little excursion today but I think she really enjoyed herself. She smiled a few times too. Calli and her brother, Acer, can really get the smiles out of Mom.

Despite the time constraints we had this morning, I was able to get her up and dressed and even a little breakfast down her before we left. She only ate about 1/4 of her small bowl of cereal, but it was something. She was scared to go down the stairs this morning, so I pulled one foot down and then she brought the other down, then I did it again, and again, until we were all the way down. I managed to stay calm even though I was running behind time. I shouldn't have made the phone call I made this morning, I should have waited until the afternoon, but I didn't. Mom was fine coming out of the house and getting in the car on the way to church. We we left, she was nervous to get in the car, but I stayed calm, and got her in. I pretty much sat her down on the seat first and then moved her legs. It worked. She was nervous going up the steps into the house, but we did it. I wonder how much it would be to put in a ramp. I am thinking that might be a good idea. I will have to check into it. She got into the living room (it has a step down into it) no problem, so we shall see about going up the stairs tonight. I think she was just really tired when we left the church which is why she was having a bit of trouble. She is sleeping away right now. I just checked on her.

My head hurts a lot this afternoon, thank goodness it didn't hurt real bad until we got home. That would have been terrible to have it hurt bad at the church during the service. I took a pain pill when I got home and it has gone down a bit. Nothing else planned for the rest of the evening except Extreme makeover home addition. I like that show and so does Mom. Sometimes I think the way they decorate the bedrooms are ugly, but mostly I like what they do. I think it has really helped the families out a lot for the ones who get the house. We don't need a bigger house, we need one on one level with hallways big enough for wheelchairs for Mom. We will manage with what we have. Together, we can do it. That is my motto for me and mom. We just have to stick together.

My nails are making a clicking noise on my keyboard and it drives me nuts. It means I need to trim them because if they are making this much noise on the keyboard for the computer, what noise are they going to make on the piano keys? That would drive me nuts faster. I don't know how some people can play with long nails and sound like they do, but they can. I can't. I have to turn in competition stuff at the end of the week for the kids who are attending. My plan is to go, all depending on how Mom does. If she is doing well in July, we go, if she isn't, we don't. That simple, whatever Mom is up for. We would leave on Wednesday and return on the Monday as the awards show ends very late. Mom and Tillie wouldn't have to stay down in the banquet room for the whole thing, they could go back up to the hotel room and rest. I will have to stay for the whole thing though. All depends on the little person and how she is doing. I do hope to go because it would be a nice break for us and I think she would enjoy it. I know Tillie would, she has never been to Chicago. I have several times. The first couple of times it was for an audition and then once for vacation. Mom and I had a good time then. She also came with me for those few times for auditions. She used to drive me (even though I was an adult) to them so I could relax and concentrate on my audition material. It was very nice how she did that for me. We had it all mapped out and I would sleep and rest and she would drive. I miss the mom from those days, although the one I have had for the last few years is a nice one too. I just love my Mom tons and I am keeping her with me as long as possible. So far, it is working out nicely. She is doing alright.

Oh, yeah, the bank fixed the mistake they made and just in time too! Our house insurance is due Monday and it comes out automatically from the checking account. I am so happy that it is fixed and in time too because that would have been bad, very bad.

We have a busy week ahead for us. I don't get to see my Grace anymore until next fall because she is done until then. I will miss her but I do see her on face book, so I will be able to follow what she is up too. I also won't have my Calli this week as her schedule doesn't permit a piano lesson. Her brother, Acer, can't wait until fall for his piano lessons. That will be a new challenge for me and I can't wait either. I just love all my students. I have had the best students ever. I just friended a former student on face book, Francesca,. I haven't seen her since she was in high school about 10 years ago. She was a good kid. We are going to do lunch in the future. I think that will be fun. We are also going to Lansing for the day for the Fibromyaglia Advocacy Day. That will be a fun event and I hope we do some good for all of us who have FMS.

I hope you have a great week too!

It has been a rather busy day for us in the Paxton household. First, we got up a bit earlier because my cousin, Hayley, was expected. She arrived as expected and we sat down for a little visit when, boom! Mom started crying. We both were like what's wrong??? Mom had an instant headache near her ear. She said it hurt really bad. I gave her some Motrin. She stopped crying for a few minutes and continued on with her breakfast. Then she started again. It started to hurt really bad again, so I gave her a bit more and decided to take her to the ER. By the time I had her ready to go to the ER, it stopped. Hayley had already left because we were leaving too. Mom said it went away. I was in indecision of what to do, so I decided to wait and see. It came back 1 more time about an hour later and that has been it all day. If it happens again I will take her in, but it is gone now. So instead of taking her to the ER, we went to our usual. She ate a donut, but nothing else because she already had a bowl of cereal and a little bit of ensure. I, too, only had 1 bagel because I had a bowl of cereal already too.

After that episode, Lily arrived in time for her lesson. Mom's head hurt her 1 more time and then Lily and I moved her into the living room with us and she fell asleep and then was fine. Lily had a good lesson, we worked on a few things she needs to work on and then it was Aggie's turn. Aggie started a new song this week and we didn't get to the Italian song at all. I am sure she was so upset over that. NOT! She needs to remind me to dig out the CD to one of her songs from school so she can practice it for the benefit concert in August. We are doing one for an orphanage in Mexico. Katie K went there this past winter for a mission and wants to help more.

Then it was BOOK CLUB! I just love book club. We read "the Geography of Bliss". It was a really good book. It was about a journalist who went to different countries to learn what their idea of happiness was. Just a fascinating book. We have to miss book club in June because of people's schedule. I am disappointed, but I totally understand. It wouldn't do do have only me for book club. That wouldn't be any fun. We are meet again July 24. I hope to have our newest members there for that one. We are going to read the Time Traveler's Wife. Maggie had suggested it a few months ago and we just haven't gotten to it yet. I think August we will be reading Aggie's suggestion. It sounds fun too. We flipped a coin to see what we would read. We will get to both books anyways, so that is good. Debbie stayed for a bit later after book club was over. She is moving to Seattle, as I have said, and while I am excited she is going, I am sad she is going to. She leaves in about 8 days. Boo. I can't wait to read what wonderful experiences she will be having being a nanny. That will be so cool to read. Children are so unpredictable that it is funny to watch them. I have a blast during lessons with them because you never know what they are going to say next. Never, it is always a surprise.

Mom is doing alright now. She keeps trying to move my mouse and mouse pad though. It is like they don't belong where they are and she needs to move them. She is also constantly smoothing out the table cloth. It is quite amusing how she does this. So far, no sign of an instant headache again. I thought maybe if it was her jaw it would show up when we ate dinner but it didn't. Well, I will just be on the lookout for it.

My jaw is hurting a bit, but that is also normal for me. When I first bit into something, whether it is soft or hard, my jaw hurts. It goes down after I chew for a few moments. It is really annoying, but there isn't anything I can do about it. Pain is relatively alright for a change. This last week has been horrible for it because of the rainy weather, but it is supposed to get nicer as the week goes on, so maybe the pain will relax for a change. That would be nice. I am rather tired today as we did get up a bit earlier than usual today and I didn't sleep well last night. Mom is yawning too right now. I must have passed it on to her. I think we will put in a Walker Texas Ranger episode before we go to bed. Mom is doing really well with nothing on while I am typing. I think she is entertaining herself or is watching me yawn and type.

I hope your day is going well. I can't wait for tomorrow either as we have a party and baptism to go to. I am rather excited about that.

It is a rather dull day outside, sun in, sun out. Mom is sleeping in the living room. As soon as I am done here I am going to get her to do her hair. I will do mine first, then hers. She had a hard time going down the stairs this morning but I got her down. Then we went to Timmie's and she couldn't get in the car to go home. Our friend, Rosemary arrived at that moment so we went back in the restaurant to chat with her. I had some diet coke left, but Mom had nothing left to drink. She wasn't thirsty though so it didn't matter. After that, she got in the car fine. It is weird how sometimes that happens. We had to go to Walmart for some stuff. She got in the car to go home just fine there too. Like I said, it is too weird.

I didn't finish Emily's dress for the pinning yet. I am so tired right now that I am not going to do it now, maybe later, but not right now. We have a busy weekend for a change. I am rather excited about that. Tomorrow is lessons, Hayley, and book club. I mean, how cool is that? Sunday we have Calli's baptism and potluck after it. I think I will see what Heather (my friend and Calli's mom!) needs, then I will know what to bring. I have to make a deposit to the bank tomorrow. The bank has not finished fixing the mistake yet. I hope it is done before Monday when the house insurance goes through, if it doesn't, then the bank will have to reverse it's fees because they made the mistake and I am not paying for their mistake. The lady at the bank said that wouldn't be a problem, so I am holding her to it. Yup, I am.

Mom ate a bit better so far today. It is so hard for her because she just doesn't know when she is hungry anymore. She drank a bit of milk and ate 1 1/2 donuts. She wanted 2 of them today. I don't know why. I don't ask why either, if she wants it, she gets it because she will eat it. Normally we go out to dinner tonight at the little cafe, but because of the bank error, we can't because we don't have enough money for that. At first I was like, grr, but now, I don't really care because it means I don't have to get mom in the car 2 more times. She is sleeping in the living room right now.

Mom has moments when she hurts to sit down. I have her stand when that happens, part of it is because these chairs are not the most comfortable to sit on all day long. I am going to get her a cushion after our money comes in next week so she can bring it with her wherever we go. She was getting sore at Timmie's because we were sitting so long so I had her stand up. It is because she is so terribly thin. She only weighs 92 pounds right now. She is a bony, tiny, little thing. Just so small.

I tried new disposables on her today, they are too big. They have the straps on the side and so I thought it would be easier to take them off her. Not. They are too big for her and I got her a small/medium. I mean, really, she isn't that big. I went and got her the type we had so I will put those on her. Much better product than the straps one. In theory the straps would be easier because you don't have to take off pants to remove and put them on, in reality, the are just too big. Way too big. She is tiny! She really could use extra small, but they don't make those.

Overall, it is just an average day with not much to do. I should be on my way home from sewing right now, but tonight is the girls confirmation so no sewing today. We didn't have it last week because of the doctor appointment with Mom. I am looking forward to next week. The girls are almost done with their outfits, so it is almost time for something new. We have been sewing for almost a year now. I love sewing days. It is almost as fun as teaching music, not quite, but a darn 2nd. Mom enjoys those days too.

I haven't heard from anyone since my ad went in the newspaper, however, it only ran one week instead of 4. I called the person I am dealing with and she forgot to put my ad in last week and this week, so I was mad. It should go in the next 3 weeks. I mean, I paid for 4 weeks, I want my ad in for four weeks. We shall see if I get any response. Please pray, I am only asking for 2 new students, although I have room for more, so that would be great too!

Pain is regular today except in the left arm, that is a bit sorer than usual. Don't know why, it doesn't respond when I ask. I hope your day is going well.

It has been a so-so day. Not too bad, not too good, just okay, which is just fine by me. If you don't have the so-so days, how can the good ones stand out? They couldn't, could they? Anyways, we were pretty busy today. We didn't get up until noon. We did our usual, then we went to Heather B-T's house for a visit, then dinner at home, and then to the subdivision meeting. It was fun and I volunteered to help with the block party. Our next door neighbor, Kathy, also volunteered. She wanted to speak with me at the end of the meeting, I wasn't sure why, but hey, she's a nice neighbor and I used to play with her daughter all the time. She asked me about mom and said to call her if I needed anything, she anything at all. It was very nice because sometimes I need help. It is just that simple, so it is nice to know I can call on a neighbor. She said she would be here all of June and August, July they will be camping so they won't be home. I hope the family has a good time. She was stunned about Mom, completely stunned. Of course, Mom has gone down since Christmas so she is at her worst right now. I think I need to up her anxiety medicine by 1/2 at night because she is getting anxious at night again.

Mom did not so good with eating today. She wasn't very hungry, I even got her ice cream, but she didn't eat much of it. She had about 1/3 of it. She ate most of her donut and a bit of her muffin, but dinner, not much at all. I tried to feed her but she ate as much as she could, and that was it. She is drinking her ensure now, I hope she finishes it. She thinks she does better than she does. I have a hard time saying, no Mom, you didn't eat well, she cries when I tell her. So I don't tell her that. I tell her she does good even when she doesn't. I mean, what else you can tell someone in her position? You tell them they are doing good and that you love them. That's what you do. I figure tomorrow she will be hungry since she isn't tonight. That's what happened yesterday, she was hungry because she didn't eat much on Tuesday.

She was afraid to get in the car because she didn't know how. This week I lowered her dose of anxiety, and I think I should have just lowered it a bit. She is less afraid with the medicine. So I will raise it by a 1/2 of a pill, the doctor said that would be good. She fell asleep at Heather's today, but that was okay, she does that a lot and they don't mind. Mom likes going to my friend's house. I think she really likes Heather's mom, Pat. She is very nice to Mom. I think she really likes her too. Mom loves Heather's kids, Acer and Calli and she really likes Heather. Mom doesn't get so confused with the two Heathers anymore, which is good. It sure confused Mom at first. It was like she didn't know that two people could have the same first name. But now she gets it so we have a good time when we visit. I look forward to Thursdays for that reason, but next week, I won't see them at all because Calli has rehearsal on Monday and a Doctor's appointment on Thursday. I have a blood test next week on Thursday. ugh, I hate them.

Mom has been standing up since we got home, she doesn't want to sit down, I don't know why. She likes to stand. I think her bottom is getting sore from sitting so much. I need to buy a nice little cushion for the dining room chair for her. Her chair is just a folding chair with a little bit of a cushion but it does get hard after a while. The living room chair and sofas are comfortable though, she sleeps like a log on them. I hope tomorrow is a good day, we have no plans. Well, I do have plans, I am planning to pin up Emily's dress for the wedding. I want to pin it and have her try it on before I cut and sew the hem. I need to get some hem tape too because that stuff works really well. I am not doing Lily's dress for the wedding until it is closer to the wedding. She is in the middle of puberty and well, if I do her dress now, she may not fit into it and that would be a tragedy.

I hope your day tomorrow will be good. I also will be doing Mom's hair and bath tomorrow since we have the whole day off. No sewing class tomorrow because the two of the girls are getting confirmed tomorrow.

Here is the weekly link:

http://www.nxtbook.com/nxtbooks/fma/fibromyalgiaaware_2009winter_v2/