Mom is home! I am soooooo happy about that. I picked her up at 10 am. I quickly packed her suitcase and went down to laundry to pick up her other clothes. I have some laundry to do for her, but that is okay. I will do it, tomorrow! She hasn't had her anxiety medicine for the entire time she was in the nursing home. I found that out today. No wonder she was so miserable and crying all the time. She was scared and nervous the entire time she was there. I don't know how long it will take until she feels comfortable again. She has really gone down in the last month with everything that has happened to her. I have put the new plan in place. We both fell asleep this afternoon though for about 3 1/2 hours. We both are rather exhausted. I don't know how she is going to do when it is time to go to bed, but we will go up together and I will put her to bed. I plan to sit with her as long as it is necessary. She still cries easy right now. She did pretty well at Tim Horton's this morning and the little restaurant for dinner. Mom hasn't eaten very well, but I figure it will take a few days before she is comfortable enough to eat a bit more again. Her appetite isn't very good to begin with. She did eat 1/2 her donut this morning and she ate a bit of mashed potatoes and soup. I brought the left overs home for tomorrow's dinner. I am so glad she is home although she is nervous.

Pain is a bit higher, not sure why today. I am feeling better now that Mom is home. I should sleep better tonight!

I can't wait until tomorrow!!! Mom comes home. How exciting. She looked a bit happy about coming home but then she got nervous and cried. Poor thing doesn't know if she is coming or going these days. I hope after a few days at home she will even herself out. She ate pretty good for lunch. yeah, they think I am going to puree all her food. That isn't going to happen right now. I cut up her food into small pieces and she does just fine with them. I will be clearing off the dining room table this evening since she will be arriving tomorrow. I want it cleared so she won't pull any piles down. She tries to be so helpful, unfortunately, she pulls from the bottom of the piles not the top so everything crashes down. I am pretty tired today although I am not so sure why. I went to bed okay last night so I really shouldn't be extra tired. I am excited about tomorrow and a bit nervous too since she hasn't been home in 3 1/2 weeks and won't really know where everything is. I hope everything goes okay once Mom is home. She should hopefully cry less since she will be with me, that is the hope. She is very dependent on me and this has been hard for the both of us. She saw the doctor and they don't think anything is wrong with her ear or her throat, not that they can find. I will keep an eye on it and see what happens. She had an ear ache during lunch again but she was very nervous and crying a lot too. I actually wasn't the one feeding her since she wouldn't eat for me, a nurse assistant came over and she got Mom to eat some. Mom wouldn't drink anything though which is normal for her there. I will be putting my plan in action so we shall see how successful I will be.

I have 2 students later today, in about an hour so I am happy about that. After that I will be clearing the table before I eat dinner. I am going to grocery shop tomorrow with Mom so she can tell me what she wants. Pain level is alright for a change. It isn't too hot or muggy out right now so that is probably why. It is supposed to rain tonight though, so my head may get bad with that, but right now it is alright.

I hope you are having a good day.

1 1/2 days until Mom is home!!!!! I can't wait!!!!! Today has been a pretty good day so far. I won't be able to see Mom until tomorrow because of both our schedules. When I am not teaching she is in therapy or bed so that ends the plans on visiting today. However, I will make it for lunch tomorrow and then by 9:20 on Wednesday ready to take her home. I know she was supposed to see the doctor again this morning. I will find out what he said tomorrow. It would be nice if he gave her something for the pain in her throat and ear that they keep ignoring. If it keeps up, I plan to take her to our doctor to find out what is going on. I am hoping once she is home it stops and she can relax again because she will be with me. Just because the doctors can't find out what is wrong doesn't mean she isn't in pain! Look how many doctors and years it took to find out what was wrong with me. Mom never gave up on that and I won't give up on her.

On to better news. The Muglia family will be getting a piano! A real piano! The girls are so excited about it. It will go in the living room where the big keyboard used to be. The found it at an Estate sale and the person they bought it from knows someone who can transport it to their house. I am so excited for them. The three older girls (there are 8 children in the family now) love playing piano and I love teaching them. I also teach them sewing on Friday. They are excited to see Mom as she hasn't been at sewing for a few weeks. They are such a nice family, really nice and caring.

I hope to pick up a few more books this afternoon at the used bookstore. I have pretty much read everything that is left in the house. I have spent the last 3 1/2 weeks reading when I am not teaching or sleeping or sewing. I have a bit of sewing to do this week too. I will have Emily's and Lily's dresses ready for Saturday. I just love sewing. It is something that Mom and I used to do together. Now she watches me and sometimes gives me advice. She can remember a bit about sewing so that is good. Originally it was supposed to be the two of us teaching the Muglia's but with Mom's memory, it is really just me. I don't mind. Time flies when I am there. The girls have each made 3 items. Hannah has made 2 tops and 1 skirt. Lydia and Natalie have made 2 skirts and 1 top. I don't know what they will start on next but we will be using wool material. I have several boxes for them to choose from. I will also be finishing Sarah's skirt this week for her. It won't take too much time since she is so little. (she is five)

Pain isn't so bad so far today. I am a bit more tired than usual because I went to bed late again last night. I need to stop reading before I go to bed because I don't know what time it is when I am reading and often it is past midnight when I stop. Not recommended for a girl who is exhausted all the time. I plan to head for bed early tonight so I am more rested when I see Mom tomorrow. I have to go to bed early tomorrow night as I will be picking Mom up rather early. I don't mind since I'd rather pick her up early than late. She is anxious to get home.

I hope you are having a good day!

another link of the week!!!!!

http://www.nxtbook.com/nxtbooks/fma/fibromyalgiaaware_2009winter_v2/

Mom is doing a bit better today than yesterday, although she is still in pain. She will see the doctor tomorrow. I can't wait until Wednesday!!!!!!!! I just can't. As long as everything is okay, she is coming home Wednesday. She ate 2/3 of her lunch today and had 2/3 of the ensure cup they gave her. That was pretty good for her. Mom was pretty tired by the time I left, I had a bad headache again. Partly from the stress, the other part from the weather. This episode has been so hard on the both of us. Donna thinks part of her ear problem could be clenching her teeth, that is a good possibility. She does clench when she is nervous and she has been a nervous wreck for 3 weeks now since she hasn't been home. She admits to being very nervous. She doesn't understand why. I do. It's because she isn't with me and home, but starting Wednesday, she will be with me and will be home. Her physical therapy is going well and so is the occupational therapy. I only cried a little bit when I was with her today. I think after she comes home it will be easier on the both of us. I have read so many books since she has been gone though, oh my. I read most of the time. I don't want to watch the TV show DVDs we have until she can watch them with me. I enjoy her company especially when we do things together like go to a show or watch TV. Sometimes I read out loud to her too. All depends on what our moods are. 2 1/2 more days!!!!

My head is real bad today, like I said. My arm is a bit sorer than usual too. I think I am extra sore because I am so tense right now. I took a pain pill so I hope that helps with the pain. It is going to rain again here. That's what it looks like outside.

I hope you are having a good day. My days will improve as soon as Wednesday arrives.

Just got back from visiting Mom for her dinner. She didn't eat very much. She is in so much pain she couldn't eat. I nearly lost it there when I was trying to feed her. It hurt her throat so much that I almost starting wailing myself. I did lose it when I got home. I am having a difficult time handling her in pain. She is in so much pain and has been for over a week now. Why aren't they doing something about it? Obviously, Tylenol is not working very well. She doesn't understand what is going on as it is, let's just add pain on top of her confusion. Yeah, great, sounds fun doesn't it? I keep telling myself, 3 1/2 days, just 3 1/2 days, that is all we have to survive and then she will be home with me. This is killing me, just as it is her. She calls for me all the time and cries most of the time. Some of it is from pain, like tonight, and some is from fear. She is scared to death and doesn't understand what is going on. If we didn't need her medicine, I would have pulled her out 2 weeks ago, but we need her medicine. I can see the light at the end of the tunnel, Wednesday! I can't wait until Wednesday. I will see her for lunch tomorrow and then I won't see her on Monday because of teaching, but I will see her on Tuesday and then I will be picking her up on Wednesday. I think she is getting dehydrated again, because of the head and throat pain. I really hope not. They don't seem to think her pain is any big deal though because they aren't calling in the doctor. So we wait until Monday when she sees the doctor again. I hope she isn't dehydrated and that it is just what is left over from the dehydration, but you never know with Mom. I just don't want a set back that will keep her there longer. I want her home where I can watch her around the clock. She needs to be with me, then she will improve.

My head is very sore today because of the upsets I have had. My whole body aches and I am really tired too. Crying tires me out a lot. Mom asked if I was upset when we got back to her room and I said yes. She tried to pat my shoulder. Isn't that sweet? That nearly set me off too. Today is not my day, I am hopeful that tomorrow will be better. I hope your day went better than mine.

Here is another link of the week. Check it out!!!!

www.healthmattersshow.com

Mom saw the dentist today at the nursing center. They had to give her something for anxiety because she was so upset. I should have told the lady last night on the phone that they had my permission, but I didn't think of it. They called today and of course, I said yes. Her teeth are in pretty good condition considering her age and the fact she has them all. She has one new cavity that is pretty bad, and 1 filling has come out. We will get those taken care of as soon as possible. Thanks to my 2 friends who gave suggestions on dentists. I very much appreciate that. Mom ate 1/2 of her dinner which is good for her. She even drank 1/2 of the 1/2 pint of milk, first time in 3 weeks since she has drank that much milk. I was so pleased with her even though it is difficult to get her to eat and drink. It takes about an hour for her to eat, with a pit stop thrown in. After dinner they usually put her to bed because she is so tired after a long day. She doesn't get time to take much of a nap there because of the therapy in the morning and the therapy in the afternoon. I would much rather her be put to bed early than no therapy or less therapy that is for sure. 5 more days and she comes home, although it really is 4 1/2 because she gets out so early on the 16th. I still haven't touched the dining room table. He he he. I will work on it this weekend. I have just been rather lazy about it but it will get done before she comes home. I plan to get a nice spring/summer bouquet of flowers for her homecoming. It will have been 3 1/2 weeks since she has been home and she deserves some flowers. I plan to go out to dinner with her too, but that will wait until the weekend. She needs to rest up a bit before we go out.

I had sewing class with my girls today! Lydia finished her skirt and Natalie is almost done. I have to take the flounce off again (2nd time) because she put it on backwards. I told her I would take it apart and finish it off sometime next week. I also plan on finishing Emily's and Lily's dresses this weekend. So all in all, a lot of sewing next week! It's nice to have plans to be busy. I will also be able to have knitting next week which is something I have not had in about 3 weeks. Mom will be with me, she loves visiting while my friend and I knit even though she sometimes falls asleep during the visit. Mom gets so tired so easy now that I have to be careful with her. Outside of sewing and 2 lessons, I have no real plans this weekend. I have 1 lesson on Saturday and 1 lesson on Sunday, so perfect for me. I haven't had any response to the ads I put in the newspaper. I am rather disappointed with it, but I tried. There must be a good reason I don't have any new students right now. I just have to wait to find out why and I am not a very patient person. Who knows what God plans? Not me, I am just waiting for the answer. He has been faithful so far in my life, I just have to be faithful now.

Pain is not so bad today, thank goodness for that and my head is not as bad as it was. It is still above normal, but not like it was the last 3 days. yeah! My arm is getting better too, I can even lay on that side of my body at night for a bit now, whereas a month ago I still couldn't. I am pleased that the arm is getting better and less frozen. Maybe by the end of summer, it will be completely healed. We shall see! I hope this finds you having a good day. Mine was good and enjoyable. It is getting hot now, supposed to be very hot and humid tomorrow. I will be hiding inside tomorrow during that weather!

So I took Mom to the ENT this afternoon. A rather waste of time. She doesn't have a growth in her ear after all! Thank goodness for that. She may have TMJ, from what I read and where Mom says the pain is at, it is very likely she has that. The nursing home's dentist will look at her for that. If they don't look at her before she goes home, I will have to find a dentist and make an appointment. We don't really have the money for a dentist, but if that is what she needs, then that is what she gets. I think she does need to go to the dentist anyways since it has been years since she has gone. We will wait and see what happens between now and Wednesday. Only 6 more days until the little person comes home! Yeah!!!!

She is still in a lot of pain, her throat is better, but her ear is bad. She didn't eat much breakfast because of the pain, but I was able to get some lunch down her before the pain took over. I talked to the nurse and asked her to give Mom the pain pills closer to dinner so maybe that will help her. I won't be there until dinner tomorrow and Saturday.

I am so tired today and my head is sore again. I need a nap. I think I will go and take one shortly. I got up at the regular time today, but I don't know exactly why I am so tired except I have had a bad headache for 3 days now. I am very sick of this headache, totally sick of it.

I hope your day is better than mine.

I had lunch with my friend, Wendy, from high school. It was fun. I really enjoy getting together with her and chatting. She has to set her alarm on the phone or we would continue to chat and her little boy won't get picked up from school. That would be bad. I am sure he would like to come home. She has one more week of this school stuff and then summer vacation! I know she and the family are looking forward to it.

I saw Mom, as usual, this afternoon for lunch. She was checked by the doctor today for her earache and her throat. She has a growth in her ear so tomorrow I will be taking her to the ENT doctor. The first one I called, she couldn't get in until June 29 so when I was telling Wendy, she gave me the name of another doctor. I called him when I got home and we have an appointment for tomorrow! How cool is that. So after lunch tomorrow, I will take her to the doctor. It will be the first time she has ridden in a car for 2 weeks. Too bad I have to take her back, but I do until the 16th when she comes home for good. I can't wait. 7 more days. Oh, I found her clothes down in the laundry at the home. They are now marked. There is just one t-shirt that is in the laundry now that needs to be marked. I will get it tomorrow. So we are all set on her clothes now.

She didn't eat very much for breakfast or lunch because of the pain in her ear and throat. I think her throat is just raw from the dehydration. They took out the IV this morning. I hope they are going in and asking her to drink every hour or so. They said they would be. I don't know how much she will handle today though with the pain that she is in. I don't like seeing her in pain. I hope this growth thing is easy to deal with because she certainly doesn't need anything more to happen to her. She doesn't understand what is happening now much less if there is something bad about this growth. What could they do for her? But I will be hopeful and find out tomorrow. I am asking for pain pills for her though because she is in extreme pain from this growth. Tylenol just isn't cutting it for her.

Today is a tiring day. I had a really bad headache last night when I went to bad. The type that the tummy had to join right on in. I finally fell asleep but I am so tired today because I didn't sleep that well from the pain. I am going to bed early tonight that is for sure. In a few minutes Oprah will be on. I hope it isn't one I have already seen, that would not be fun. I haven't seen very many for the last few months because of teaching. I don't mind. If I had the choice between TV and teaching, we all know I would pick teaching.

It has turned into a nice day today. I enjoyed the visit with my friend and I do like spending time with Mom even if she does cry a lot. She will be better when she gets home and when she gets something for the pain. I hope you are having a good day.

Mom is in a lot of pain this morning. She couldn't eat her breakfast because her throat is just so raw. I tried to give her some lunch but she ate what she could, she is just in so much pain. I almost broke down and cried with her. They had given her a pain pill 2 hours before that so she can't get another for another 2 hours. Poor thing. I know what it is like to sit or lie in pain. It is awful. This whole new episode is breaking my heart. I don't like seeing her in pain. It is so hard for her to express herself that all she does is cry because of the pain. I hope they are giving her some pain medicine now as it is past 2:00. If it is like last time the pain should be lessening by tomorrow. But still, that is 4 days in pain for her. She should be able to eat better by Thursday, if it is anything like the last episode. So far, no need to send her back to the hospital. Thank goodness for that. She is confused on where she is enough.

I got her discharge papers this morning. She will be discharged on June 16 at about 10 in the morning. I will be there by 9:30 so we can have everything packed and ready to go. We are looking at 8 more days of this for her. So far all her blood tests have come out okay. Her urine test should be back this afternoon so they will know more about the urinary tract infection. She is almost done with the medicine for that. At least this way I will get whatever medicine she needs if the infection isn't gone, unlike if I take her out early. I can do this, it is only 8 more days away. She so wants to be home too. She asks everyday when does she get to go home. I just don't want her in pain. Her therapy seems to be working out well. Today is bath day but because she is on an IV, she couldn't do a regular shower so it is a sponge type bath for the little Mom today. At least she will be clean and spiffy smelling. Tomorrow I have to go down to the laundry because 1 of Mom's outfits is missing. I don't think it was marked so I will have that taken care of then. It is her favorite outfit, her Disney sweat pants and sweat jacket. She looks so adorable in it.

I have a bad headache today but I think partly because I didn't get enough sleep last night. I am going to be going into the living room for a brief nap before Frank's lesson. I think the other reason is the extra stress I am under because of Mom and the latest episode. I am just not taking this in stride, I don't know how to. I know these things are going to happen to her. She doesn't eat or drink enough but once she is home I can put my new plan in place and maybe this won't happen for a long while again. At least I know how she behaves when this happens. I wish I could prevent it from happening. My arm is really sore too, I think I am sore almost everywhere today. I hope tomorrow is better.

I hope your day is going well. Mine probably won't be good until Mom is home, safe and sound, with me.