Saturday, August 11, 2012

a lovely afternoon with my girls!!! 8-11

I had such a lovely last couple of days.  Last night, after teaching a few lessons, I was invited to the Hubel's house for a girls night!  We watched "National Treasure 2" and had dinner.  It was wonderful! Then today, I went to the Muglia's house to watch "Percy Jackson and the Lightening Thief".  Wow, what a wonderful afternoon with my girls!  First last night and then this afternoon.  We are planning to watch a few more movies soon too.  I simply just love spending time both with the Hubel family and the Muglia family.  They are so nice and good friends too.  Tomorrow I have 3 lessons so it will be a good day too so overall, a wonderful weekend.

The new medicine is not working as much as I hoped.  I tried the Cambia on a bad headache sometime this week and it didn't even make a dent in it.  I was rather disappointed but I am hopeful that something is out there that will help.  One day about a week ago, I DID wake up without a headache and boy was I happy!  By the afternoon, well, it was back.  But like Dr. R said, this is the lowest dosage and we have some room to wiggle as she calls it.  I do find that I get a dry mouth so easy with the new medicine.  I drink a lot of water now because of it.  Not that drinking water is bad, it is just unusual for me to drink this much.  I hope that it will help with the weight loss.  I go back and see Dr. R at the end of this month.  I also have to bring the films from the MRIs I had in 2008 when the doctors said I have an anomaly in my head (whatever that is).  She wants to look at them herself.  As she puts, she is anal that way.  I had to smile at that one.  I have a note to bring them with me to the appointment because otherwise I would totally forget!

I received a note from www.healthline.com editors and I have been chosen as one of the best 21 Fibromyalgia Blogs for 2012.  I was so excited about this.  I mean, really?  How cool!  Several of the blogs I read also were on the list.  It is a neat thing to be on this list.

Camille had her lesson today.  She is doing so wonderfully.  She has switched to the Snell books.  They are harder than the other books we were using and her hands move everywhere and a lot.  Camille has no problem with that.  I was very pleased with her songs today.  Camille has lessons every other week for an hour.  Her Dad asked about competition today.  I said that I think Camille should go since she plays so well.  We worked on counting in 6/8 today.  She was having a bit of trouble with the new part in her Tarantella song in her lesson book.  I think we have worked it out and she understands now.  It is a new time signature for her.

Choir is not singing in church tomorrow so I can sleep in, which is good because I have a bad headache tonight.  The men in the choir are singing by themselves tomorrow.  It should be awesome.  Apparently, there will be a Sunday when we women from the choir sing by ourselves.  I do like the variety of music we sing.  Sometimes it is a classical choral piece, other times it is a contemporary and we have done several spirituals too.  The choir director, Lee, really likes to change things up.  I like how he does that because it really makes choir interesting.

Well, I am getting tired now so I think it is time for a bit of relaxing reading before bed.

Sunday, August 5, 2012

Sunday 8-5

Calli has decided to drop piano for now and just keep singing instead.  I think she was a bit nervous to ask me but if this is what she wants, no problem.  She can always pick up piano at a later date.  Calli is going to sing "Over the Rainbow" for the Summer Concert.  Acer will sing "Wade in the Water" and play "Why Am I Blue?" on the piano.  They had make up lessons today since they were out of town on Friday.  Minh had her regularly scheduled lesson.  Sundays go much faster when I have some lessons.  I do have some music I need to put in Finale this week.  I need it before next Sunday when Rick comes back.  It is for the Summer Concert.

Tomorrow, my lovely Rachel will be absent.  She is such a cutie but she will be out of town.  She will be absent next week too.  I will miss the lovely girl until she gets back in town.  I think I have only 1 lesson tomorrow.  Although, I am hoping that perhaps Isaac is back and ready for lessons again.  He has been gone most of July.  It is hard to believe that school will be starting again for the students.  I have bought a few new notebooks for any new students I will hopefully have in the fall.  I have room for a few new students.  I have been working on paying the property taxes this summer.  I try to send in as much as possible, even if it only $25 since they will add up.  I should be able to have them all paid by the deadline.  I am pretty sure about it.

I have missed a lot of the Olympics this time.  I usually watch all the gymnastics.  It is my 2nd favorite sport to watch after Figure Skating.  I forget it is on until I go to bed and then I remember, oh yeah, gymnastics was on or swimming or anything else.  When Mom was here, Olympic time was sacred meaning don't ask for anything while she was watching her Olympics.  I warned Andrew to find another ride to work because Mom was glued to the TV during Olympics time.  he didn't believe and was so upset when he had to take a cab to work.  When we were at competition in February 2010, Mom and Tillie watched a lot of the winter Olympics in the hotel room while I was running around listening to my students.  I still smile of her excitement over the Olympics.  She didn't even care what country would win, it was just athletes doing their best.  Mom really liked the track and field in the summer games.  She used to do the long jump and run when she was a child.  I wish I could have seen that, of course being a daughter, there is no way to see a mother as a child.  Mom also ice skated as a child.  Mom was very into sports unlike me who leans towards the performing arts.

Well, I have to start a new book tonight.  I finished the one I was reading this afternoon before Minh's lesson.  It was a Kristin Hannah book.  Her books are very good and very interesting.  I also have a new book by John Grisham.  I am sure it is as good as his other books.

Here's to a start of another musical week!

Saturday, August 4, 2012

Hmmm, a Saturday Night 8-4

Once again I totally forgot about a bill and got stuck with the $35 late fee.  Ugh!  I know it is due on the 3rd.  I wish it was the 5th, but it is the 3rd.  Perhaps next month I will remember.  I also forgot to pay for the cable and internet last week.  I have fixed that one already.  oh, what can I say?  I am trying to be on top of things around here.

Today was a rather boring day because I had no lessons.  I know everyone needs a day off, but when I have days I don't teach with no plans, I am super duper bored.  I went to go and get gas but the gas station had no power so I couldn't get gas.  I will do that tomorrow before lessons after church.  Carolyn will not be in church tomorrow.  She is such a nice young lady.  I really like her family and her a lot.  They are good neighbors.  I have a lot of good neighbors that is for sure.

Tomorrow I will have Calli and Acer's lessons.  Calli made the state team for goal ball.  I am so proud of her.  She worked so hard for that opportunity.  I can't wait to meet her guide dog.  I have to start teaching the students that we cannot pet him because he is working.  That will be hard for the little ones  as their first impulse will be to pet and play with the dog.  I have to do some shopping for the BBQ this week because I need to spread out the cost of the meat over the month.  I do have some plasticware left over from last year so that is good.  I have to start the list of what I need for the party.  I am planning to do that tomorrow afternoon.  Calli will probably not have a piano piece ready for the summer concert, but I think over the rainbow should be ready.  She is such an amazing girl.  She really is.

I have the best students in the world.  Some days I sigh and think, I wish I could teach full time but I know that the last time I worked full time I was in and out of the hospital 15 times in 14 months so I don't think I can do that.  I am thankful for the students that I have that is for sure.  They are all so good.

Friday, August 3, 2012

Friday 8-3

It is so amazing to me that the older I get the faster time flies.  Hard to believe, but it is August already.  In 16 days is the summer concert.  I am so unprepared for that.

I had the follow up with the arthritis doctor.  I don't have the blood test results yet but I did have the results of the x-rays.  So far, the arthritis is in check and hasn't changed much since last year so that is good.  I think the physical therapy and the occupational therapy helped a lot.  I have learned some new exercises that help with the arthritis pain.  I am sure that losing more weight will help even more.  I hope to be 1/2 my size by the end of next summer.  That is my goal.  I priced some recumbent ellipticals and well, they are very expensive so I am hoping for one off of Craig's list or something like that.  Once I lose a bit more weight, I will worry about something like that.

I don't have any lessons tomorrow so that is a bit unusual for me.  It will be nice to have a break tomorrow.  I don't want a long break, just a day will be fine.  I have a lesson on Sunday in the late afternoon.  My student was in a car accident so she has to have someone drive her or loan her their car. She has a cracked rib and a few scrapes and bruises but overall she will be okay.  I am thankful for that.  So until she gets another car, we will have lessons on Sunday late afternoon.

I was hoping to see Calli and Acer today but they are out of town.  I am hoping that maybe they will have a lesson this weekend.  I haven't seen Calli in over a month.  I did see Acer.  We had lessons and also went grocery shopping.  He is almost ready for the summer concert.  I have to write down what everyone is playing at the concert this week.  I also need to purchase the hamburgers and veggie burgers since they come frozen, I can buy them at any time.

Well, time to read a bit before bed.

Saturday, July 28, 2012

Movie Day 7-28

I took the girls, Sarah, Hannah, Lydia, and Natalie to see Brave this afternoon.  We had such a good time.  After the movie we went to get the girls ice cream.  I brought my drink in because I didn't want any ice cream.  I really liked the movie although it was different than I expected.  It had such good music too.  I really must get the piano music for my students.  I can't seem to find it at pepper's music.  I will have to call and see if it available.  The music was just so awesome!

I am watching this show on National Geographic channel.  It is interesting.  This couple was accused of   passing false papers and human trafficking.  They weren't, they were foster parents of a young baby.  I missed the first 15 or so minutes so I am not sure what started all of this.  I can't even imagine spending over 2 years in an Egyptian prison.  I hope to never find out what it is like in ANY countries' (including ours) prison.

The Olympics have started.  I went over to Kelly Lynn's house to watch the movie Tangled, but we ended up watching the opening ceremonies of the Olympics.  It was very fun.  We are going to watch the movie another time.

I have a bad headache tonight.  I am hoping it will go away in time for church tomorrow.  I have missed 4 weeks in a row because of bad headaches.  I do hope to attend tomorrow.  I can take a wee nap after church so that will be good.  I do have 2 lessons tomorrow.  I have Rick's voice lesson and Minh's piano lesson.  I am glad I have them because they will give me something to do tomorrow.  Sundays can be very quiet without lessons so I am glad that I am doing some teaching.


Tuesday, July 24, 2012

Tuesday 7-24

Not much extra excitement today here.  No bat, no flying objects, so a good day.  I am very sleepy today for some reason though.  I think it is the new medicine for headaches, the everyday medicine.  I think I need to adjust my nighttime sleep medicine.  I am going to do that tonight.  I also want to change the time I take the medicine.  I am thinking perhaps an hour before bed would be better.  That is what I am going to try tonight.

Since it is Tuesday, that means that Dance Moms is on.  It is entertaining as always.  I also really like the show Rizzoli and Isles too on TNT.  NCIS are all reruns at this time so I don't mind missing them right now.

I am getting the students ready for the summer concert.  Last summer was the first time in a long time that we have had one.  After the concert, we have a BBQ party.  It is so much fun.  Laith (age 7) has decided to play the song he has been assigned for his lesson today.  It is one page.  He likes the short songs.  He is in level 2 and should be finished with his flash cards but since he guesses so many of them, I won't put them away.  I told him today that when he stops guessing we can be done with them. The thing is, he KNOWS his notes!  He can read them really well.  Laith just likes to guess them.

Tomorrow I have to get 3 gift certificates for the Richards' girls.  They have all chosen Toys R Us.  I am also seeing Tillie tomorrow.  She is coming to pick up her package that she has ordered.  She is having surgery on Thursday.  My cousin, Maia (Tillie's youngest) has Breast Cancer.  She is having chemo treatments right now and then she will have surgery.  I think about her a lot.  She lives about an hour from me.  I am hoping to see her soon.

I am really hoping this new medicine works.  I have a bad headache right now.  Sometimes, I get so annoyed at myself because of the Fibro and other illnesses I have.  I just get so sick of being sick.  It seems so long since I have been healthy that I don't remember what it was like.  I can't remember what it is like not to have a headache.  I am looking forward to that feeling.  The doctor said I should have some results in about 4 to 5 weeks.  I have only taken it for a week now.  I am hopeful though.  I almost cried when the doctor said that there was something that could be done for everyday headaches. After being disappointed so much, it was so nice to have hope.

I am going to read for a bit and then head for bed.

Monday, July 23, 2012

an interesting day - 7-23

Well, I woke up today and came downstairs as usual.  I sat down at the dining room table and look up to the window.  Well, wow, I thought at first it was a bug.  A really, really, really big bug.  Then I looked again and realized it was a bat!  Yes, a bat!  I freaked, quietly though because I didn't want to wake the little thing and have it fly around the house.  I called my neighbors and asked what to do.  They were at the dentist so I wouldn't see them for a while.  Then I posted a post about the bat hanging in my dining room on face book.  I called the non-emergency number of the police to find out what to do.  They gave me animal control's number.  I called them and they sent someone to come and take care of the little bat.  It was only about 3 inches long and 2 inches wide.  This is the second time in my life a bat has been in the house.  I think it came in the house on Friday night when we were moving tables out of the house for the party on Saturday in the neighborhood.  It completely freaked me out.  The last time we had a bat, Momma as here so she helped me corral the bat to the door.  This time, I was all by myself.  Well, the bat is gone and with animal control, thank goodness for that!!!

Other than that, it has been a quiet day.  I had a few lessons and that is about it.  I am rather tired today or at least I am right now.  I will probably head for bed early since I have occupational therapy tomorrow morning.  Heather B-T will pick me up about 11:15 am for it.  I think Bill's car will be fixed tomorrow.  We are all hoping so that is for sure.  I am sure he would like his car back.

I go see Dr. Aloot on Wednesday next week.  I have the x-rays done so that is good and she should have the results either today or tomorrow.  It will be just in time for the Doctor appointment.

This, I think, is my last week of occupational therapy.  I do like this therapist better than the physical therapist.  He was okay but he didn't stay with me while I did my exercises like all the other therapists do.  That kind of bothered me.  He would go and stand at a table looking at paper work while I had to wait for him to realize I was done.  He also didn't have me try a tens unit which was something my doctor wanted me to try so I still don't know if a unit would help with the pain or not.  Although I am not in as much pain as I used to be since I do my exercises so the physical therapy did help, which I am thankful for.  I am hopeful that the occupational therapy will be as helpful.  So far, it is.  I do have to get a reacher though.  I haven't done it yet.  I will in the next couple of weeks.  I don't usually go to target and that is where they have them.

I am going to read for a while before bed.

Sunday, July 22, 2012

the start of another musical week 7-22

This weekend was a good one.  Yesterday, I went to the neighborhood party.  I brought some of my students with me.  Natalie, Hannah, Sarah, and their brothers Patrick and Paul.  We all had such a good time.  I was able to chat with a few neighbors that I hadn't seen in a while.  I had a good time watching the kids have fun too.  The bounce houses, the popcorn, cotton candy, and snow cones were a big hit with my group.  I really had a good time.  My neighbor and friend, Kathy M graciously switched vehicles with me so I could go and pick up a few more Muglias than what my car would allow.  It was very nice of her.  We really appreciated it.  One of my neighbors and friends, Jessica came and said goodbye to my students.  She asked if they had a good time and they all said it was wonderful.  I am so glad I was able to bring them with me.  I do enjoy spending time with them.  Next week, I am hopeful that the girls and I can go and see Brave together.  The girls have chosen to get ice cream after instead of dinner.  They say it is now tradition.  I had to smile at that.  The last few times we have gotten together we have gone for ice cream afterwards.  I don't mind.  Basically, it boils down to what they want (within reason of course) but if they want to get ice cream after, I will take them.  They are such good kids.  I have the best students.  I really do.

It is all set.  I just spoke with Laura, their mother, and we girls are all set to see the movie Brave next week after lessons.  I am very excited about that.  We will go in the afternoon to see the movie and then, following the new tradition we have, go to Baskin Robbins for ice cream.  I will probably do what I normally do which is to just take my drink in and not get ice cream.  If I do want some, well, then I will get some.  However, I am so pleased with my progress on eating healthy and losing weight, I probably will not want any.  So far, I have lost about 7 pounds.  I sure hope the arthritis doctor is pleased with this news.  Maybe by then, I will have lost more weight.  It is a start and I have a looooong way to go.

My head has been bad again today.  I have had bad headaches about 4 to 5 days a week now.  I had to miss church again this morning because of it.  I do hope this new medicine will really take effect soon and then I will be headache free for a while.  That is my goal anyways.  It will take a few weeks before the medicine will start working.  I guess it has to build up in my system and that takes a while to do.  It will be nice not to wake up with a headache   I have no idea what that even feels like at this point.  It would be nice.

I am watching a NCIS marathon right now.  I have seen most of these episodes but they are still really good.

Tuesday, July 17, 2012

Neurologist Day 7-17

I am so excited about this appointment that I had this morning.  I was very nervous to go to another neurologist because of what has happened before.  In 2008, I was hospitalized with a really bad headache, I think it was the worst one I have ever had.  I have no idea how I drove to the hospital in Rochester, but I did.  Anyways, they ended up doing 2 CT scans and 2 MRIs.  I have the films from the MRIs.  I was there for a week.  Mom was with me the whole time mainly because she couldn't have stayed home by herself and because she wanted to be.  She refused to go home when I had someone to stay with her.  Hey, I had company all week long, what can I say?  Anyways, I nervously went to the office.  I have been in the building before.  It was in 2008 when I had to see the hematologist after the blood clot.  He was the one who discovered my lovely (NOT) blood disorder.  I was surprised that I went in close to the time my appointment was and the doctor was in rather quickly too!  I am so used to waiting forever, it seems, to get in to see the doctor that this was a complete shock to my system.  I went in and the nurse took my blood pressure.  It was pretty normal.  I usually have very low blood pressure but one of the medicines I take raises my blood pressure to normal.  So, the doctor asked me lots of questions and we talked about the medicines I have tried for headaches.  She also asked me why I haven't seen a neurologist since 2008.  I told her it was because 3 different neurologists said there was nothing that could be done about my everyday headache and the medicine that one of them gave me that was supposed to make the bad ones less painful and less frequent, really didn't work and I felt awful on it.  The good news is that the other neurologists were wrong.  There IS something that can be done about the everyday headaches.  I was shocked, you could have knocked me over with a feather.  I almost cried.  I have had a headache everyday since I got that awful vasculitis in spring of 2003.  The vasculitis cleared up except for the headaches.  I think maybe one morning in summer of 2005, I woke up without a headache but by the afternoon, it was back.  To think that in a few weeks, once the medicine builds up in my system, I may be waking up without a headache, wow, I can't remember what that is like.  I also now have Cambia for the bad headaches.  I have some samples right now and boy do I hope it is not expensive.  The other everyday stuff is not too expensive at all so that is good.  The new doctor also wants me to bring in my MRI films so she can confirm that there isn't anything wrong with the head.  It was a bit funny because she said she is really anal about stuff like that.  She likes to check it out herself.  I will see her again in 6 weeks so I will bring them.

That is mainly what went on today.  I did have several lessons.  They all did so well especially Aubrey.  She is just flying through the piano books.  I have to get her the gift certificate for her points for practicing.  She has chosen Toys R Us.  I think her little sisters might want to take some of their points for Toys R Us certificates too.  Michelle, their mom, will let me know by the weekend.

Oh my!  I almost forgot the other good news!  Since I have been eating much, much, much, much, much (you get the picture) healthier, I have lost 7 pounds!  Okay, I have much more to lose, but this is a good start!  Well, time to read before bed.  I get to see my wonderful friend, Jennie tomorrow for her lesson.  She is going to audition for a play in her town and it is a musical so I am helping her get ready for the audition.  We are having a good time together along with her learning more about her voice.

Saturday, July 14, 2012

Saturday 7-14

I had a new little guy today.  Cameron is 4.  He was very shy but eventually he played on the piano.  His dad sat with him.  I explained that it is very important for little ones his age to have their parent with him when he has a lesson and practice.  His dad agreed.  I am very lucky about that.

Camille did awesome as usual.  She is about to move into the Keith Snell books.  She is excited about how she will pick her songs.  I have all the songs on CD and she will pick by what she likes on the CD.  She is also excited because this means more fun music for her.  I simply adore that young lady.  She is just an amazing girl.  Her younger sister, Ella is going to start soon too.  Her little sisters look so much like her.  They are all so cute and sweet.  Camille is such a good piano player.  She really is.  I would say she is one of the best I have ever had.  She is very gifted.  I have had other gifted students, but she is definitely one of the best.  I did mention piano competition to her today but she has months to think about it.

I am watching the new American Girl Movie called McKenna.  I only saw the last hour though.  I didn't know it was on so I missed the first hour.  It is definitely something that eventually I will have to get.  I have another American Girl movie called Kit.  I liked that one a lot too.  The American Girl movies are usually very well done and this is no exception.  I need to get the Molly movie, the Felicity movie, and the Samantha movie.

We have had a brief break in the super hot weather this week.  So far, 90 is the highest unlike last week where we hit triple digits and super high humidity.  The humidity hasn't been too bad either so that is good.  I haven't had as many bad headaches this week since the humidity and the heat are down a bit.  I can't believe I actually think 90 is a break but compared to last week?  It certainly is.  Next week only Monday and Tuesday will be in low to mid 90s, the rest will be in the mid 80s, even better than this week!

Tuesday, I go see the new neurologist.  I am a bit anxious about this since the last time I went was in 2008.  I know that there isn't much they can do about the everyday headache.  I don't know why, but 2 different neurologists have told me that.  I am not sure what can be done about the bad ones though.  That is why I am going.  In the last 6 months I have had a rise in bad headaches again.  The last time that happened was in 2008 and I ended up in the hospital for a week.  I really don't want to go through that one again.  I like being hospital free.  It is nice and my bed is much more comfortable that a hospital bed.

Well, I think it is time to read since McKenna movie is over.  It had a nice ending.  I am going to have to get it so I can see the whole thing.

Tuesday, July 10, 2012

Occupational Therapy Day 7-10

I had occupational therapy this morning.  I was not as tired today as I was yesterday so I was able to do everything that I needed to do.  One of the things I did was a dry heat machine for my hands.  Inside the machine was chopped up corn husks and hot air.  I did one hand at a time.  Then I had a hand massage on each hand.  There were a couple of other exercises I did too.  All in all, it was interesting.

Tomorrow is my last day of physical therapy.  I have the exercises I need to do here at home so I can continue them.  Some of them are easy and some are hard so a few I am supposed to do every other day and the rest every day.  I do need to buy a band for some of the exercises.  I will get it tomorrow after therapy.

It is dance moms night and Rizzoli and Isles too.  I watching the 10 worst to best dances of both seasons.  It is sure entertaining!

Next weekend is our subdivision's block party.  I have to get the tables ready for the party on the weekend.  As long as I have lived here, I have never attended the block party.  I am going this year.  I will scooter myself down to the block to attend for the first time.  I know some of my neighbors now so that is why I am going.  I don't plan on staying too long but I do plan on attending.

This Saturday after teaching I am going to get my x-rays for Dr. A.  She is my arthritis doctor.  She is the one who sent me to both Physical and Occupational Therapy.  I would say that the Physical Therapy has helped with the pain level.  I can roll over better at night and it doesn't hurt as much.  I do hope that by the time I am done with Occupational Therapy that I can wash and dry my own hair instead of always having to go and get it done.  I want to be more independent with these type things.  I have learned to be more independent this last couple of years since I had to take care of my mother.  I had to relearn how do to some things since she couldn't help me anymore and well, now she is in Heaven so I don't have a helper anymore.  I have been able to adjust the way I do certain stuff now.  I am able to some things I never thought I would ever do on my own but I can.  That is why being able to do my own hair is important to me.  I know it is such a small thing, but when you can't even wash your own hair and dry it, it is hard.  I want to do this myself and not depend on the ladies at the salon.  I also want to be able to braid my hair.  I have nice and long hair.  It is just below the middle of my back now.  I am growing it out so it will eventually be to my waist.  That is my goal, to have hair that long again.  I figure by next summer it will be the length I want.  I am debating on what to do with the bangs.  I will keep them for now.  Maybe I will grow them out later.

I am hoping this weekend to see the movie Brave.  It looks so good.  I have two lessons on Saturday afternoon and then the x-rays so maybe after all that I can go and see the movie.  I finally got the movie Mirror Mirror and the series Missing with Ashley Judd.  I have only seen a couple episodes but it looks really good.  I love the ending.  It was such a good one.  I wish they would run it again for another season though.  That would be cool.  I don't know if they will or not because the network did say it was for one season only although the way they left the ending means there could be another season.

Well, time to read a bit before bed tonight.  I need to read something new.  I think I will go to the used bookstore tomorrow and see what they have I haven't read yet.  The downfall of reading really fast, you finish books fast and need more to read sooner.  Sometimes, I wish I read slower.

We have had a break in the super high temps today.  It was only 82 degrees.  I can't believe I said only but compared to 101 degrees, 82 is a nicer temperature.  It is supposed to get warmer as the week goes by.  I think we hit 90 again on Sunday.  Ugh, that is just really hot and the humidity is supposed to be high at the end of the week too.

RSD, Rejection Sensitive Dysphoria

  One of the hardest parts of ADHD for me is RSD.  There are so many words I have been told as far as I can remember that still go through m...