Monday, December 15, 2025

I Missed the Anniversary!!

 December 8th has been an important date to me since 1983.  That was the day I had my surgery to straighten the center curve of my double S Scoliosis.  I have a small curve in my cervical spine and a small one in my lumber spine, of which neither could be corrected as I would never be able to bend or sit or turn.  At the time, the surgery I had was revolutionary.  Prior to this invention, patients would have one rod fused to their spine.  It was a very long recovery.  Because of the newly invented clips, I would have 2 rods fused to my spine.  One was a straight rod, as with the normal surgery, and the other looked more like the edge of a drawn pine tree.  I would not have a cast or a brace.  Patients with only the one rod, had a cast right after the surgery for several months followed by a brace for several more months.  My back was taped for a few weeks then there were 3 stitches that needed to be taken out at home and that was all for that.  Then I had to be careful not to twist or be bumped too much.  I did get to miss quite a bit of school.  I did not mind that.  School was not my favorite place.  The only thing that worried me was solo and ensemble was coming up and I was not quite ready yet  

My mom did bring my clarinet with us to the hospital, well, to her friend's house where my family was staying.  About 4 or 5 days after my surgery, she brought my clarinet into my hospital room for me to play.  I could not get a sound out of it.  I was so upset. I burst into tears.  How could I not play my instrument?  I had to play my solo in about 2 months or so.  Mom tried to calm me down.  I was too upset at the time.  I wish I did remember what happened later that day but I don't.  I do know that kby the time I was home a day or so, I could get sound out.  It crushed me that it took that long.  No one warned me about that.  Music was and still is my life.  As my friends say, I eat, sleep, and breathe music.  My head is never quiet of music.  I have music in my head all the time and I always have.  That is just me. 

December 8, 1984 was when I was finally allowed to twist and do all those things I was to be careful about.  Good thing, only about 4 months too late.  Marching Band Season started in August 1984.

Oh, and I got a II on my solo.  I was very disappointed in myself because to me it meant I did not prepare as well as I should have.  It was the only II I had ever gotten on a solo.  All the others were I's.  Everyone else was thrilled.  I was not.  Can you tell I have ADHD and perfectionism??  Looking back, it was a good rating because when I said I got a sound, it was a very soft thin one.  It wasn't until about 2 1/2 weeks  before the festival that I could actually play with a decent tone and dynamics.  Had I had more notice on when the surgery was going to be, I would have started learning my piece much earlier.  We didn't.  It was a matter of: this day is open so take it.  I think we had maybe a month notice.  Missing a month and a half of good practice was awful to me.  However, having a straight back and then learning to dance afterwards was well worth it.

Tuesday, December 2, 2025

Very Tough Last Few Months

 These last few months have been so horrible for me as far as pain goes.  The last month, I have been back and forth between sleeping in my lift chair and my bed.  Tonight and the last two nights have been the lift chair.


I do not know what I did but it feels like electric shocks on my right elbow.  My left upper back is really painful right now.  


Wow.  I started this last night.  I must have fallen asleep.  Crazy.  Yesterday, A talked about wanting to begin piano again.  He says he stopped because of not knowing when he could have a lesson.  He said like with the new shoulder blade thing today.  He said he never knew if I would end up in the hospital.  He didn't say it in a mean or a cruel way, just a matter of fact way.  I got what he was talking about. I let him let out his frustration.  I get his frustration.  It was also really hard not to say something like, how do you think I feel.  I refrained from doing that, hard as that was.  


Well, as this is the third time I have tried to finish this, I think I will have too.  Tomorrow at 9am, here at home I will have an OT Evaluation as I not only cannot wash my own hair, and haven't been able to for years, I no longer can brush my own hair.  Thursday, Thanksgiving Day, Kathy brushed my hair for me before we walked into her mom's house.  I am both extremely anxious and happy about it at the same time.






I Missed the Anniversary!!

  December 8th has been an important date to me since 1983.  That was the day I had my surgery to straighten the center curve of my double S...