Tuesday, April 15, 2025

Being a Burden

 For years I have felt like I am a burden.  I have never really been healthy.  I was born with tummy problems and then, well everything that comes with fibromyalgia plus several other things.  If you averaged out the amount of days I missed of school from kindergarten to senior year, it would come to about missing one day every single week.  

My older brother used to "joke" how when he couldn't find me, I must be taking a nap.  I never thought it was funny.  For some reason, it has always kind of seemed to annoy him how much I sleep.  Until I was actually officially diagnosed, it was difficult to get others in my family to understand there realize that I had something wrong with me, health-wise.   

I was 25 when I got sick.  My mother was a big part in helping me get better after the first flare that was absolutely horrific and I ended up needing to rest a lot.  Unfortunately, this was not the best choice at that time.  My mother helped me by stretching my arms and legs.  When we first started the new stretches, mom did not want me to do any stretches on my own, only with her.  We continued and eventually got a bit better.   I know there are people who disagree with how my mother handled my first huge flare, it is okay.  Those people weren't there.  They don't understand what we were working with or rather what we weren't working with: a diagnosis. It was somewhat easier when we did get the diagnosis.  It was January 2004.  11 years we waited to get an official diagnosis.  After we got the diagnosis, we started researching all about fibromyalgia.  We learned a lot and the journey has been interesting.  

Even with all her support, I still felt like a burden at times.  I haven't really figured out how not to feel like this.  

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