Saturday, October 4, 2025




 It is very late now.  Normal for me though.  I have been a night owl since I was a child.  it is also very quiet in here, the living room.  My beautiful little Peony pup is such a good companion.  She too, is a night owl.  

It has been really hard for me these last few weeks. I can’t stop playing words over and over in my mind.  Was the person joking? Serious?  I don’t know.  I am deaf, well, not completely, enough that even with hearing aids I cannot hear those nuances that normal hearing people can to know when someone is joking or being sarcastic or being serious.  I think the person may have been being the comments: you need to stop getting sick. You need to stop going to the hospital.  You need to make more money.

How do I stop getting sick?  I wish I knew.  It isn’t like I can say, okay, I am not sick anymore. I am chronically ill.  Chronic. Never ending.  Yes, I have meds that help with managing the biggest symptoms, they really don’t take away the symptoms.  I have pain meds that do help with the pain, however, I am still in pain 24/7.  The lowest my pain gets in 5/10.  This is including the headache I have had since March 2003.  Nothing has stopped this headache.

The next one: stop going to the hospital.  I would love too.  I am tired of the inside of the ER and of hospital rooms in general.  I really don’t go unless I absolutely have to.  The last time was about 2 months ago and it was for the cellulitis ii have.  

Lastly: you need to make more money.  I am rather aware that I do.  It is really hard knowing that I have to keep track of every detail I spend.  I hope not to some day.

I am not holding my breath for any of this.





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