I am so thankful!!! On Wednesday, I had the mammogram and the breast ultrasound and it is not cancer! The pain that has been coming and going must be from the lovely prolactinemia. Such a strange thing. Also, the lightheadedness and the nausea can be caused by that too, of which, neither has gone away. I know, I know, it takes time, but still, I am such an impatient person! I want results now! I will try to be patient with these things.
I woke up this morning at 5 am and I felt like I could take on the world. Well, by 6 am, I was back asleep and when I woke up at noon, I was exhausted. So goes my day. Nothing new here. I did read a bit this morning before I went back to sleep because I couldn't sleep. I didn't really want to go downstairs and go on the computer so I read.
My daily headache is a bit worse than usual today, but definitely not as bad as yesterday when I had to lie down for a while. It was so bad. I have given up on break through meds because at this point, they are not helping one little bit. Not one bit so there is no point in suffering through an awful shot if it isn't going to work, right? If it gets super bad, I am to call my neuro and she either calls in a prescription or sends me to the ER for the IV form of the meds that finally worked when I was in the ER last fall. I get so tired of the ER at times. Fortunately, in 2014, I have not been in one at all! It is a record so far this year.
I only have 2 students tonight, Acer and Emily. Acer is finished with his lesson. He is such a musical young man. Emily will be here in a bit. She plays piano. Tonight she is coming for an hour to make up for missing last week because of traffic and other obstacles in the way. This will work out well because next week is the spring concert and we need to work on her song a lot so an hour will be just fine for us. Em is such a sweet girl.
Tomorrow, I am so excited because my Amy is back! She was out of the country for about 7 months and now she is back! She would have been back last week but we had the wedding so that was important. It is also book club tomorrow. I wonder what everyone thought about the book. I will tell what I thought after book club, not before. I do hope that everyone is able to come. I love book club and we actually do talk about the book, which, I understand, many book clubs don't. We are just weird that way.
I am really tired now. It is just crazy how tired I am now. I have a short break before my Emily will be here and then I can crash for the night. I probably won't since I haven't had dinner yet, but I could.
It's really strange but I have had a sore throat for 5 days now. It is only on the right side, though, which is good, but it is strange. My right ear is starting to hurt now too. This is not looking good. I am not up for an ear infection or a cold or anything else right now. However, should I end up with something like that, I will rest and do what I need to do. I'm just hoping to pass over this. Star is rather ill right now. She has a bad head cold and actually had to cancel a performance tonight because of it. I felt so bad for her. She so wanted to perform tonight at the art show but she is just too sick. Star is a beautiful dancer. I haven't seen her dance in years but I am hoping to see her in some of the shows she has coming up. Star only just recently started back to dance. I am hoping that when I get down to a reasonable weight to be able to go back to dance. That is my dream. I do not, however, want to go back to pointe. I don't think my hips will like that so that is okay. I love contemporary ballet or lyrical jazz best anyway and you don't need toe shoes for those. I miss dance. I wish I hadn't quit but the fibro was so bad, I had no choice. I just couldn't do it anymore. I really couldn't. The pain just got too much for me to handle. Now that the pain is a bit more manageable at times, I am dreaming of the day I can dance. The meds take the edge off of the pain so that helps me through the day, although my day is sooooooo much shorter than the average person, it is still my day. I sleep a lot, or rather, I spend a lot of time trying to sleep as I wake up about every 2 or so hours. Sometimes, my best sleep is between 6 am and 12 noon to 1 pm. It is just the way it is. So, sometimes, I spend 12 to 14 hours trying to sleep. I am a 12 hour sleeper and I pretty much always have been. I know some people say I sleep too much but I have tried sleeping less and I find after a couple of days of it, I end up crashing and burning and sleeping the whole day and night away so this way is better.
My leg pain is not doing any better. I am thankful it is only the right leg and not both. I don't know why it happens, I have tried many different things but nothing seems to work. It is not coming from my back, that I have figured out. It is my leg because it is the lower part at first and then it raises to the thigh.
Well, Emily will be here shortly and I want to get some stuff done before she gets here.
Friday, May 16, 2014
Wednesday, May 7, 2014
One answer to a test
I had some blood tests last week and I had to redo one because the levels were high. I was unable to shower or touch my chest before the blood test and I had to fast for this test. Well, the results were the same, high. I have proactinemia. I have to take some medicine for the rest of my life to keep the levels normal. It is caused by a tumor in one of my glands. Usually, the tumor is not cancerous. I have to see a new doctor. He/she will decide if I have to get an MRI to see if it is cancerous. The doctor said not to worry about the tumor at all, so I am not. I will have a mammogram and an ultrasound next week to see what the fibroids are in my breast. I already have the thing where the lining of my lungs are inflamed. I have pain there all the time, it is normal. The pain I had a couple of weeks ago was something I have never had nor have had since. I am not looking forward to the mammogram. They hurt no matter your size. I have come to that conclusion, it doesn't matter whether you are big or small, it hurts to be squeezed like that. The ultrasound will hurt if they press to hard because of the lining of my lungs pain. All in all, I am not looking forward to that day but I am looking forward to the answers. One good thing is that I have not had the super sharp pains since those couple of days.
My normal headache is a little above normal pain levels right now. I am tired. I got up earlier than usual to meet my friend, Jen for lunch. I love how we meet every 2 to 3 months to catch up on each other's life. We had 2 wonderful hours together that were full of laughter and much chatter. I showed the new pictures I took of Maisy, the little Brussels Griffon Dog and she showed me pictures of the kids. She has 4 children, ages 12, 11, and 4. The 12 year olds are twins. It was a fun time. Jen is also in book club with me too but she will be unable to make it next week as she will be out of town.
This Sunday is Mother's Day. I get so sad on this day as my momma passed away in 2010. I don't know if my younger brother is going to her grave or not but I just can't. I don't know if I will ever be able to see it in person. I have seen what the stone looks like in pictures. Every year, he plants new flowers but I just can't go. She isn't there, I know that. But still, I just can't deal with it. I have a hard enough time with her birthday, the anniversary of when she died, and Mother's Day that adding to go and see her grave puts me over the limit of what I can handle. So, I will spend Mother's Day with Star and her mom. We are going to tea and it shall be fun. We will remember her grandmother, who passed away last year, and my momma. I miss mine so much. I don't think there is a day go by that I don't think how much I miss her. I miss the momma she was before Alzheimer's and the momma she became with Alzheimer's. I was her caregiver and I am glad was. There was good times and bad times during my caregiver days but overall, it was good and I am really glad I got the chance to spend all that time with momma. It is something I will never regret. I just wish I got to spend time with her now. Alzheimer's took so much away from her and from us but then again, is there any disease that doesn't take something away? I don't think so. I think all diseases take something away from the person who has it.
Saturday is my friend's wedding. Kathy will be there! I am so excited to see her at the wedding! It should be lots of fun! I think so anyway. I am hoping that my head will be in good shape and that I will be well rested to attend the wedding and the reception. I generally avoid receptions because of the sensory overloads but with Kathy there, I just have to go. My wanting to spend more time with her out weighs the sensory overload watch level. I may pay for it on Sunday but as I am going to tea later in the day, I will have time to recover and if I need to cancel, they would totally understand but I think I am planning the couple of days well.
Well, it is almost dinner time. I have to go and pour the milks for everyone. That is my job.
My normal headache is a little above normal pain levels right now. I am tired. I got up earlier than usual to meet my friend, Jen for lunch. I love how we meet every 2 to 3 months to catch up on each other's life. We had 2 wonderful hours together that were full of laughter and much chatter. I showed the new pictures I took of Maisy, the little Brussels Griffon Dog and she showed me pictures of the kids. She has 4 children, ages 12, 11, and 4. The 12 year olds are twins. It was a fun time. Jen is also in book club with me too but she will be unable to make it next week as she will be out of town.
This Sunday is Mother's Day. I get so sad on this day as my momma passed away in 2010. I don't know if my younger brother is going to her grave or not but I just can't. I don't know if I will ever be able to see it in person. I have seen what the stone looks like in pictures. Every year, he plants new flowers but I just can't go. She isn't there, I know that. But still, I just can't deal with it. I have a hard enough time with her birthday, the anniversary of when she died, and Mother's Day that adding to go and see her grave puts me over the limit of what I can handle. So, I will spend Mother's Day with Star and her mom. We are going to tea and it shall be fun. We will remember her grandmother, who passed away last year, and my momma. I miss mine so much. I don't think there is a day go by that I don't think how much I miss her. I miss the momma she was before Alzheimer's and the momma she became with Alzheimer's. I was her caregiver and I am glad was. There was good times and bad times during my caregiver days but overall, it was good and I am really glad I got the chance to spend all that time with momma. It is something I will never regret. I just wish I got to spend time with her now. Alzheimer's took so much away from her and from us but then again, is there any disease that doesn't take something away? I don't think so. I think all diseases take something away from the person who has it.
Saturday is my friend's wedding. Kathy will be there! I am so excited to see her at the wedding! It should be lots of fun! I think so anyway. I am hoping that my head will be in good shape and that I will be well rested to attend the wedding and the reception. I generally avoid receptions because of the sensory overloads but with Kathy there, I just have to go. My wanting to spend more time with her out weighs the sensory overload watch level. I may pay for it on Sunday but as I am going to tea later in the day, I will have time to recover and if I need to cancel, they would totally understand but I think I am planning the couple of days well.
Well, it is almost dinner time. I have to go and pour the milks for everyone. That is my job.
Monday, April 28, 2014
When New Pain is Not Fibro 4-28
Last Thursday morning at about 3 am, I woke to some very, very, very sharp pain on the right side of my chest. It was simply awful. I knew it was new and different. I knew it was NOT fibro. There are no muscles in that area where it hurt to have fibro pain. I had an appointment with my arthritis doctor that morning so I went as scheduled. I hadn't planned on saying anything because well, this was my breast, not my arthritis but when she asked if there was anything new, I told her. She instantly became concerned and asked to see it. There seemed to be a bit of a discharge, clear, but she saw it. I didn't but she did. I was told if it did not stop within 24 hours I was to call my doctor immediately for an appointment. It didn't stop so on Friday I made an appointment for Monday. It DID finally stop on Saturday night so that was good. As for the discharge, it stopped on Thursday.
So this morning, bright and early, and I mean bright and early for me (9:30 am) I got out of bed to be at the doctor's for 10:30 am. Well, Dr. J examined me and I now have to go for a mammogram and an ultrasound. She didn't make any diagnose or guess to what it could be, for which I am thankful. I don't know if it is anything serious or not, but she is not saying anything until the studies are done. I really appreciate that about her. She gets the tests done, then she diagnoses what is wrong. I really like this doctor a lot. She did feel some fibroids and there was some pain when she examined me but the pain could have been fibro because if you touch my sternum or my ribs or anywhere around there too hard, it hurts because the lining of my lungs are always inflamed. It is just the way they are.
May 14th is my appointment, thankfully at a relatively later time. It must be done at the local hospital because it is a study that must be done.
It was a nice week, last week. I had most of my lessons, which is nice since I had sooooo many absences for the month of April that it was a tight month, financially speaking. I had a beautiful Easter weekend with Kathy. I saw her on the night before Easter and on Easter Sunday. The Saturday night was just her and I. We went out to dinner and laughed and giggled the whole time. It was lovely. We went to Red Robins and lets just say, boy did I eat enough for 2 meals. We had cheese sticks, cheese burgers, fries, and oreo shakes. Yup, definitely too much food. Then on Sunday, I went to her parents' house with her and her family for dinner. Her mom is a great cook so dinner was really good too. Kathy's kids seemed happy with the bag of candy I bought them. Acer and Calli were happy with their I-tunes cards too so all in all, children were happy. That is the main thing, happy children. This weekend, Bill, James, and Heather cleaned out and organized the sun porch and the garage, or at least 1/2 of the garage. It looks so nice with the stuff on shelves and everything. Now we have to go through my boxes to see what we really need to keep and what I don't need to keep. Because of tax purposes, I must keep some store stuff for 7 years so we are in year 6 after losing the store so in December of 2015, the boxes can be shredded and forgotten! I can't wait. No more store stuff. It seems like a million years ago that I owned a music store. I don't miss it anymore. I don't even miss the busyness of it. I also don't miss the 15 times I was in the hospital from November 2007 to February 2009. I only owned it from February 2006 to August 2008 so it did take a major toll on my health that I had not expected. I am much better now in the way that I can rest in between lessons, and I am so much less stressed over employees who wouldn't do their jobs or listen to how to do their jobs. I am just glad it is finally over and will be even more when the last of the paperwork can disappear.
Yesterday, I went to Windsor to see Tilley. It was mostly a nice visit. A few complaints from her but not too bad. I am glad. The plan for Mother's Day is to have a potluck at her house. It should be rather fun. Andrew is coming too. I haven't seen my brother since September so I look forward to seeing him.
As far as Fibro pain goes, nothing out of the ordinary right now. It seems the breast pain has taken over the leg pain right now or at least during the day. I still have leg pain at night. I find one way I can uncramp my leg is to actually get out of bed and then climb back into bed to lie on the other side instead of rolling over. Rolling over makes my leg hurt worse so this is better even though it is rather annoying to have to get out of bed to lie on my other side. Oh well, it IS better than the extra pain though.
My headache pain has been a bit increased due to the weather, I think. I see my neurologist this Thursday. It sure seems like I see all my doctors in one month. I think we will be starting some other medicine because this stuff isn't really helping at all so onto something new.
So this morning, bright and early, and I mean bright and early for me (9:30 am) I got out of bed to be at the doctor's for 10:30 am. Well, Dr. J examined me and I now have to go for a mammogram and an ultrasound. She didn't make any diagnose or guess to what it could be, for which I am thankful. I don't know if it is anything serious or not, but she is not saying anything until the studies are done. I really appreciate that about her. She gets the tests done, then she diagnoses what is wrong. I really like this doctor a lot. She did feel some fibroids and there was some pain when she examined me but the pain could have been fibro because if you touch my sternum or my ribs or anywhere around there too hard, it hurts because the lining of my lungs are always inflamed. It is just the way they are.
May 14th is my appointment, thankfully at a relatively later time. It must be done at the local hospital because it is a study that must be done.
It was a nice week, last week. I had most of my lessons, which is nice since I had sooooo many absences for the month of April that it was a tight month, financially speaking. I had a beautiful Easter weekend with Kathy. I saw her on the night before Easter and on Easter Sunday. The Saturday night was just her and I. We went out to dinner and laughed and giggled the whole time. It was lovely. We went to Red Robins and lets just say, boy did I eat enough for 2 meals. We had cheese sticks, cheese burgers, fries, and oreo shakes. Yup, definitely too much food. Then on Sunday, I went to her parents' house with her and her family for dinner. Her mom is a great cook so dinner was really good too. Kathy's kids seemed happy with the bag of candy I bought them. Acer and Calli were happy with their I-tunes cards too so all in all, children were happy. That is the main thing, happy children. This weekend, Bill, James, and Heather cleaned out and organized the sun porch and the garage, or at least 1/2 of the garage. It looks so nice with the stuff on shelves and everything. Now we have to go through my boxes to see what we really need to keep and what I don't need to keep. Because of tax purposes, I must keep some store stuff for 7 years so we are in year 6 after losing the store so in December of 2015, the boxes can be shredded and forgotten! I can't wait. No more store stuff. It seems like a million years ago that I owned a music store. I don't miss it anymore. I don't even miss the busyness of it. I also don't miss the 15 times I was in the hospital from November 2007 to February 2009. I only owned it from February 2006 to August 2008 so it did take a major toll on my health that I had not expected. I am much better now in the way that I can rest in between lessons, and I am so much less stressed over employees who wouldn't do their jobs or listen to how to do their jobs. I am just glad it is finally over and will be even more when the last of the paperwork can disappear.
Yesterday, I went to Windsor to see Tilley. It was mostly a nice visit. A few complaints from her but not too bad. I am glad. The plan for Mother's Day is to have a potluck at her house. It should be rather fun. Andrew is coming too. I haven't seen my brother since September so I look forward to seeing him.
As far as Fibro pain goes, nothing out of the ordinary right now. It seems the breast pain has taken over the leg pain right now or at least during the day. I still have leg pain at night. I find one way I can uncramp my leg is to actually get out of bed and then climb back into bed to lie on the other side instead of rolling over. Rolling over makes my leg hurt worse so this is better even though it is rather annoying to have to get out of bed to lie on my other side. Oh well, it IS better than the extra pain though.
My headache pain has been a bit increased due to the weather, I think. I see my neurologist this Thursday. It sure seems like I see all my doctors in one month. I think we will be starting some other medicine because this stuff isn't really helping at all so onto something new.
Thursday, April 17, 2014
The never ending saga: Pain
Today is a high pain day for some of the joints and my headache is higher than normal. It is because of the tramadol incident with the doctor. I have some now, not from her, but I have some and that is what matters. I should be back to my normal pain level by Saturday just in time to have a nice Easter Sunday with Kathy!!!!! I am so excited to see her and her family! I bought the kids their candy gifts last night. i didn't get much because I know they will get a lot more from the Easter Bunny. I got Acer and Calli their gift certificates earlier in the week so that is good. I am glad about that. I don't get them candy because they get so much and I wanted to get them something else so I got them I-tunes gift cards since they both have ipods or iPhone. It should be a good weekend all around so I am really looking forward to it. I am not sure exactly what is going on on Saturday except a couple of lessons as far as I know but that will be fun. This week has been a lot of absences because of vacations and things like that. Last Saturday, both my students cancelled so that was bad and then Monday one more cancelled because she was still on vacation. Fortunately, Memphis, from earlier in the week has rescheduled so I am pleased about that. With tomorrow being Good Friday, I am not sure about cancellations either. I hope my little boys don't cancel. I have had so many cancel this week already, I don't want anymore besides, I really love my little ones. They are so cute and are working so hard. I love all my students. They are a really good group right now. It is a good thing.
We have contacted the city hall and the chief of the animal control shelter and so far, no go on the dog. So far, they all say that the guide/service dog counts towards the pet count although by the FHA law it shouldn't be. I don't know. Right now, I am just happy that Heather BT shares Maisy and I get daily hugs from her and that I can play with her everyday. Whether or not I get my own at this time is up in the air. I am waiting for an email reply to my email that I wrote a few days ago.
Lessons went well today. Sarah started on "Do You Want to Build a Snowman" from Frozen. She is such a sweetheart and plays piano with such passion. Isaac loves his solo for the spring concert and since we have now moved the date, he can attend, which is awesome because he and Acer are singing a duet that is so cool. It is "Catch the Spirit". I love that piece. I really do. Ally has chosen her clarinet solo, "In the Forest". She is a beginner and is doing really well. She is starting to get some of the beginning technique down pat. She loves her song and that is good. It is difficult to practice something you hate so I am glad she loves her song. Ally also has to play something not from her book or something they haven't gone over in the book so her solo for the concert will be just perfect. I am glad we have over a month until the concert. With this extra pain, I just really feel like I am in a fog more than I usually do so I am so not up to date with music for the students or what I need to do to get ready for the concert. So far, only 1 person cannot be in it. There will never be a day where all my students will be able to be in a concert so I am not worried about that.
Well, I am tired and I think I am going to either read or lie down for a bit. I just don't feel too well tonight.
We have contacted the city hall and the chief of the animal control shelter and so far, no go on the dog. So far, they all say that the guide/service dog counts towards the pet count although by the FHA law it shouldn't be. I don't know. Right now, I am just happy that Heather BT shares Maisy and I get daily hugs from her and that I can play with her everyday. Whether or not I get my own at this time is up in the air. I am waiting for an email reply to my email that I wrote a few days ago.
Lessons went well today. Sarah started on "Do You Want to Build a Snowman" from Frozen. She is such a sweetheart and plays piano with such passion. Isaac loves his solo for the spring concert and since we have now moved the date, he can attend, which is awesome because he and Acer are singing a duet that is so cool. It is "Catch the Spirit". I love that piece. I really do. Ally has chosen her clarinet solo, "In the Forest". She is a beginner and is doing really well. She is starting to get some of the beginning technique down pat. She loves her song and that is good. It is difficult to practice something you hate so I am glad she loves her song. Ally also has to play something not from her book or something they haven't gone over in the book so her solo for the concert will be just perfect. I am glad we have over a month until the concert. With this extra pain, I just really feel like I am in a fog more than I usually do so I am so not up to date with music for the students or what I need to do to get ready for the concert. So far, only 1 person cannot be in it. There will never be a day where all my students will be able to be in a concert so I am not worried about that.
Well, I am tired and I think I am going to either read or lie down for a bit. I just don't feel too well tonight.
Monday, April 14, 2014
Monday and the disappointment
After spending much time looking and looking for a dog of my own, I have found out that our township has a 2 dog limit per house. Yup, 2, so basically, no more dogs in the house for us. He was cute, he was small, his name was going to be Mozart, and he would have been mine but that is okay. I will survive. I still have the Maisy girl in the house. Of course, there is also Q, Calli's guide dog. Other than that disappointment, I am alright, not great today, but alright. I am very achy today and yesterday was a wash as I spent most of the time in bed because of a bad headache. It seemed to have run in the house as Heather BT had a bad one too. Apparently, the Easter Cantata went well so that is good.
I can't believe that Sunday is Easter! I am excited about it because it means, wait for it...yes, time with KATHY!!!!!! (and crew) I only for sure get to see her on holidays so I make sure that I set time aside. I spend Thanksgiving, Christmas Eve, and Easter with her and her parents and family. I am so excited! I think you get the idea! It will be very fun and cool.
I have had 1 lesson so far and only have 1 more tonight. Jessie is such a cute girl. She is 10 and so enthusiastic about piano. I love that about her. She loves to play and that really makes me smile. She loves to practice and that makes me smile even more. All in all, Jessie is such a joy to teach. I hope she plays for a very long while.
It seems all my joints hurt today, my wrists, my elbows, my knees, my ankles, my hips, the works. I am not sure if it is because I haven't had any tramadol today as I am out or what but ugh if that is what it is. I am really hoping that it improves rather shortly as I am about to take some Advil. I know Advil doesn't work as well as tramadol, but it is better than nothing. I called the doctor and the pharmacist and it was a miscommunication between the two so hopefully by tonight it will be filled. I just ache so much. My head isn't too bad, considering, but ugh on the rest.
I can't believe that Sunday is Easter! I am excited about it because it means, wait for it...yes, time with KATHY!!!!!! (and crew) I only for sure get to see her on holidays so I make sure that I set time aside. I spend Thanksgiving, Christmas Eve, and Easter with her and her parents and family. I am so excited! I think you get the idea! It will be very fun and cool.
I have had 1 lesson so far and only have 1 more tonight. Jessie is such a cute girl. She is 10 and so enthusiastic about piano. I love that about her. She loves to play and that really makes me smile. She loves to practice and that makes me smile even more. All in all, Jessie is such a joy to teach. I hope she plays for a very long while.
It seems all my joints hurt today, my wrists, my elbows, my knees, my ankles, my hips, the works. I am not sure if it is because I haven't had any tramadol today as I am out or what but ugh if that is what it is. I am really hoping that it improves rather shortly as I am about to take some Advil. I know Advil doesn't work as well as tramadol, but it is better than nothing. I called the doctor and the pharmacist and it was a miscommunication between the two so hopefully by tonight it will be filled. I just ache so much. My head isn't too bad, considering, but ugh on the rest.
Sunday, April 6, 2014
ice cream day
Today was the ice cream celebration for my birthday! It was lovely and several of my students and their families came. I was quite excited about it. One of my friends, Elle and her family also came. It was a nice and joyous time with friends and students. I received some very nice gifts too. I got several gift cards that I truly appreciate. I really need new sheets so that is one of my plans for the target and visa card. I am not sure what color I want or if I want a color or not but that remains to be seen. I just need new sheets so I can get rid of my old and stained ones. If I can, 2 sets would be cool. I also got a Tim Horton's gift card and a Starbucks gift card too so that is awesome! Faith made me a blanket and a necklace (which I am wearing, the necklace I mean), Hannah drew me a picture. She is an excellent artist. Mary made me a bracelet that I am also wearing too. I got a Hello Kitty basket with a Mickey Mouse dressed in a Lions football shirt holding a Lions blanket. It is totally cool too. I love all the gifts and I received beautiful cards too. I will display them on the piano this week and next for the students to see. They like that when I do that. I was pleased with the turnout. You never know because things creep up and families get busy but it was a lovely way to spend the afternoon. Tilley and Lia were there also. I was pleased with this too. I hadn't seen either one of them in a while. Tilley wants to know when I am coming over next. I said I am not sure but I will definitely be looking now. I know I will see her on Mother's Day but other than that, I don't know. I have several Sundays coming up that I am off that I can go and see her so I will. All in all, it was a nice afternoon.
My headache has been a bit worse than it used too. I am not sure if it because of the change of weather now or because the medicine is failing. I am not sure. I will find out when I go to the neuro again next month. If they continue to get bad, like they are, I will have to call and change the appointment to an earlier time. I have several appointments in the next few months with doctors. I have one this month with the arthritis doctor, in May with the neuro, and June with the Hematologist. I am glad that I have a 2 1/2 month break until I see him again. My blood is actually doing well and right now, I am not bleeding anywhere, which is good because all last summer by hemoglobin's were way down. That basically means that somewhere in my body was bleeding. We couldn't find out where, but somewhere. Now it seems to have cleared up. I don't know why, but hey, I am NOT complaining, not me, not this girl.
My leg wasn't as bad this morning as yesterday morning. It was not so bad last night until around 4 am. I had Calli plug my clock in at a different place so that I can see what time it is in the middle of the night. I needed the plug it was originally in for my phone and the other one on that plug is for my nook. So thankfully, the young lady did this for me. She is quite helpful around the house.
I did have 2 lessons today after all, one with Acer and one with Calli. Acer missed his lesson on Friday because of an activity so he had it today after I came home. Calli is working on some music for the cantata at church so we went over that for her. I love both of their voices and when they sing together, something magical happens. It really does. It is quite beautiful to hear their voices blend together. When they are really working well together, they can give me chills.
I am going to see what is for dinner now. I am getting a bit hungry. Then I plan to go and read for a bit and relax. I have some games to play on my nook. I am playing words with friends. I really like although, I am rather terrible at it, but I do enjoy it. I have several games with my friends all over going. Tonight is all about relaxing and hoping the headache goes down so I can get some sleep tonight. Last night, my entire head was sore and it was so bad at times. I think that is why my leg wasn't so bad for a while because my head took over. It does that now and again. More than I would like.
My headache has been a bit worse than it used too. I am not sure if it because of the change of weather now or because the medicine is failing. I am not sure. I will find out when I go to the neuro again next month. If they continue to get bad, like they are, I will have to call and change the appointment to an earlier time. I have several appointments in the next few months with doctors. I have one this month with the arthritis doctor, in May with the neuro, and June with the Hematologist. I am glad that I have a 2 1/2 month break until I see him again. My blood is actually doing well and right now, I am not bleeding anywhere, which is good because all last summer by hemoglobin's were way down. That basically means that somewhere in my body was bleeding. We couldn't find out where, but somewhere. Now it seems to have cleared up. I don't know why, but hey, I am NOT complaining, not me, not this girl.
My leg wasn't as bad this morning as yesterday morning. It was not so bad last night until around 4 am. I had Calli plug my clock in at a different place so that I can see what time it is in the middle of the night. I needed the plug it was originally in for my phone and the other one on that plug is for my nook. So thankfully, the young lady did this for me. She is quite helpful around the house.
I did have 2 lessons today after all, one with Acer and one with Calli. Acer missed his lesson on Friday because of an activity so he had it today after I came home. Calli is working on some music for the cantata at church so we went over that for her. I love both of their voices and when they sing together, something magical happens. It really does. It is quite beautiful to hear their voices blend together. When they are really working well together, they can give me chills.
I am going to see what is for dinner now. I am getting a bit hungry. Then I plan to go and read for a bit and relax. I have some games to play on my nook. I am playing words with friends. I really like although, I am rather terrible at it, but I do enjoy it. I have several games with my friends all over going. Tonight is all about relaxing and hoping the headache goes down so I can get some sleep tonight. Last night, my entire head was sore and it was so bad at times. I think that is why my leg wasn't so bad for a while because my head took over. It does that now and again. More than I would like.
Saturday, April 5, 2014
leg pain
I didn't expect to have all lessons canceled today but they were, all 2 of them. I don't teach that many lessons each day because I just can't. Last week I over did it and was down for 2 days after that so yeah, it isn't worth doing that. I have be careful. It causes too much pain and over exhaustion to teach too much. I marvel at the thought that 10 years ago I taught 60 students a week and now I struggle with 20. Such a big difference now. Some are even every other week so it isn't like I have 20 every week plus someone is always absent. You have to count on that. You cannot count on every student being at a lesson every single week. It is just not realistic. I love my students though. I have great parents and great students that really work with me so I am extremely blessed in many ways.
Tomorrow is my birthday gathering at the local ice cream shop. Oh, I have to send Mary the address. Be right back. I have to look it up. There I am done and I have text it to her too. I have to remember to bring her daughter's ipod with me because she left it after her piano lesson on Tuesday. She and her brother, Dan are very sweet kids and are really good pianists. I am quite pleased with their progress this past year. They have really gotten into playing more and it shows. I think most of my students will be there tomorrow. We will probably fill up the place. I don't mind as it is fun or the past 3 years it has been fun. My friend, Candace will be there too. I am not sure else either off hand, but I know there will be several.
My right leg was not doing well again last night. Also, behind my right knee is very itching and sore. I have put some powder on it hoping that it will help and it seems to have helped. Because of my weight, sometimes these things happen. It is annoying to have to get up and walk in the middle of the night but considering if I do not the pain is out of this world, I will do it. It is the better end of the deal.
I have noticed that my head hurts from the back of my head to the front at night again. It hasn't reached my neck so that is good, but the back of the head is really sore when I go to sleep again. It was really bad in October, so much so that I ended up in the ER after it getting so bad I couldn't sleep. That time, the pain had started at the neck and crept up until my whole head felt like it was going to explode. Fortunately, it didn't explode, but you know what I mean!
Today's headache is just a bit worse than the usual one so it isn't too horribly bad. Isn't it amazing how we can discuss pain like it is normal, which it is to us, like it is not that much of a big deal in a way? I am not trying to minimize the pain in any way shape or form, I am just saying that sometimes we discuss it like there is no big deal. It is a big deal and no person should have to live a life full of pain like we do, but we do. I never imagined growing up that one day I would be able to say, Wow, I have had the same headache since March of 2003. That is just insane! I realized the other day, it has been 11 years since I have had a headache, every single day without a stop, without a break. Crazy, isn't? And I wonder why I doubt that as wonderful as my neuro is and she is wonderful, that we will ever find anything that will break the headache. Even in the ER with the super strong, powerful migraine top of the line stuff, did not break it, it only lessened it. I would like to wake up someday and be able to dance around my room saying, I don't have a headache. That is my dream. Will it ever come true? I don't know. I know so many of us have dreams like that, to wake up without pain. I look at my friends who don't have pain and am awed at what they can do because I can't. It just hurts to much. Now I am luckier than many who have fibro and other pain conditions, I have a decent support set. My best friend and housemates are very supportive of me and don't give me any problems when I am having a bad day. They are very helpful. My best friend, Kathy, is the best. She really is. If I need to cry, I can cry. She knows me so well that I don't even have to say hello and she knows it is me crying. Of course, I have known her since we were 3 and well that is almost 43 years now so that could have something to do with it. But she is there as best as she can be for me. My momma was also a great support for me. Some of my family are good with support and others are not but that is the same with every family.
Maisy, the little Brussels Griffon dog, is sitting next to me right now sleeping. She likes to look outside so she sits in here a lot. She doesn't sit in here too much with no one in here. Maisy is a person dog. She likes her person or people (in this case her main person is Heather BT and then me) so she splits her time when we are both home between us. It is very cute. Maisy really lessens my anxiety. I had thought about moving some boxes in the living room to new homes but I got overwhelmed and anxious because I have no idea where to put the stuff. Then I thought, I will go and look through some drawers in my room as I could really use the room because my poor closet is so over full. Well, I have to try on most of the clothes that are in there and I don't want to do that until May because of the weight I am losing. I get weighed again in May. That put an end to that. That is when I came back down here and started writing my post. It is much better of an idea!
Wow, this day has flown! It is 5:30 already! Of course, I slept in rather late because I was up and down so much with the leg pain last night. But really, I don't get up until after 12 noon anyway on a regular basis. I just don't. I sleep as much as I can because I don't sleep that well. If I get up early, I have to take a nap. I woke up too late to take a nap. Sometimes, I do take a nap just to pass the time too because I am in pain and I can't focus on anything even reading. I am two-thirds finished with the book I am reading now, "The Last Heiress" by Bertrice Small. I have read it before but I enjoy her books a lot. They are interesting characters and strong women characters that I like. I have another book by Alison Weir to start as soon as I am done with this one. It is about Lady Jane Grey, the 9 day queen of England between King Edward (King Henry VIII's son) and Queen Mary (King Henry VIII's daughter). Edward tried to change the order of succession that his father set down but it didn't work. She didn't even want to be queen, unlike her sister, Katherine who did. But I expect it will be an excellent book as every other book I have read by her has been just amazing!
Tomorrow is my birthday gathering at the local ice cream shop. Oh, I have to send Mary the address. Be right back. I have to look it up. There I am done and I have text it to her too. I have to remember to bring her daughter's ipod with me because she left it after her piano lesson on Tuesday. She and her brother, Dan are very sweet kids and are really good pianists. I am quite pleased with their progress this past year. They have really gotten into playing more and it shows. I think most of my students will be there tomorrow. We will probably fill up the place. I don't mind as it is fun or the past 3 years it has been fun. My friend, Candace will be there too. I am not sure else either off hand, but I know there will be several.
My right leg was not doing well again last night. Also, behind my right knee is very itching and sore. I have put some powder on it hoping that it will help and it seems to have helped. Because of my weight, sometimes these things happen. It is annoying to have to get up and walk in the middle of the night but considering if I do not the pain is out of this world, I will do it. It is the better end of the deal.
I have noticed that my head hurts from the back of my head to the front at night again. It hasn't reached my neck so that is good, but the back of the head is really sore when I go to sleep again. It was really bad in October, so much so that I ended up in the ER after it getting so bad I couldn't sleep. That time, the pain had started at the neck and crept up until my whole head felt like it was going to explode. Fortunately, it didn't explode, but you know what I mean!
Today's headache is just a bit worse than the usual one so it isn't too horribly bad. Isn't it amazing how we can discuss pain like it is normal, which it is to us, like it is not that much of a big deal in a way? I am not trying to minimize the pain in any way shape or form, I am just saying that sometimes we discuss it like there is no big deal. It is a big deal and no person should have to live a life full of pain like we do, but we do. I never imagined growing up that one day I would be able to say, Wow, I have had the same headache since March of 2003. That is just insane! I realized the other day, it has been 11 years since I have had a headache, every single day without a stop, without a break. Crazy, isn't? And I wonder why I doubt that as wonderful as my neuro is and she is wonderful, that we will ever find anything that will break the headache. Even in the ER with the super strong, powerful migraine top of the line stuff, did not break it, it only lessened it. I would like to wake up someday and be able to dance around my room saying, I don't have a headache. That is my dream. Will it ever come true? I don't know. I know so many of us have dreams like that, to wake up without pain. I look at my friends who don't have pain and am awed at what they can do because I can't. It just hurts to much. Now I am luckier than many who have fibro and other pain conditions, I have a decent support set. My best friend and housemates are very supportive of me and don't give me any problems when I am having a bad day. They are very helpful. My best friend, Kathy, is the best. She really is. If I need to cry, I can cry. She knows me so well that I don't even have to say hello and she knows it is me crying. Of course, I have known her since we were 3 and well that is almost 43 years now so that could have something to do with it. But she is there as best as she can be for me. My momma was also a great support for me. Some of my family are good with support and others are not but that is the same with every family.
Maisy, the little Brussels Griffon dog, is sitting next to me right now sleeping. She likes to look outside so she sits in here a lot. She doesn't sit in here too much with no one in here. Maisy is a person dog. She likes her person or people (in this case her main person is Heather BT and then me) so she splits her time when we are both home between us. It is very cute. Maisy really lessens my anxiety. I had thought about moving some boxes in the living room to new homes but I got overwhelmed and anxious because I have no idea where to put the stuff. Then I thought, I will go and look through some drawers in my room as I could really use the room because my poor closet is so over full. Well, I have to try on most of the clothes that are in there and I don't want to do that until May because of the weight I am losing. I get weighed again in May. That put an end to that. That is when I came back down here and started writing my post. It is much better of an idea!
Wow, this day has flown! It is 5:30 already! Of course, I slept in rather late because I was up and down so much with the leg pain last night. But really, I don't get up until after 12 noon anyway on a regular basis. I just don't. I sleep as much as I can because I don't sleep that well. If I get up early, I have to take a nap. I woke up too late to take a nap. Sometimes, I do take a nap just to pass the time too because I am in pain and I can't focus on anything even reading. I am two-thirds finished with the book I am reading now, "The Last Heiress" by Bertrice Small. I have read it before but I enjoy her books a lot. They are interesting characters and strong women characters that I like. I have another book by Alison Weir to start as soon as I am done with this one. It is about Lady Jane Grey, the 9 day queen of England between King Edward (King Henry VIII's son) and Queen Mary (King Henry VIII's daughter). Edward tried to change the order of succession that his father set down but it didn't work. She didn't even want to be queen, unlike her sister, Katherine who did. But I expect it will be an excellent book as every other book I have read by her has been just amazing!
Wednesday, April 2, 2014
Wednesday 4-2
I can't wait until Sunday. I just can't. This Sunday I am celebrating my birthday with my students at an ice cream place near by. A few of my students started this after my mother died when I had commented that I had no one to celebrate my birthday with. Hannah, Natalie, Lydia, and Sarah were like, of course you do! You have us! Wasn't that just the sweetest thing ever? So ever since then we have been celebrating my birthday together. My real birthday is next Tuesday on the 8th, and I will be here at home with a few lessons but that is okay. I will have celebrated it with most of my students as to my surprise, most are planning to come!!! I am so excited about this! I have the best students and their families are the greatest. I am very, very blessed this way. It is a great way to celebrate, I think.
It has been a better week this week than last. I was starting to get a cold on Wednesday last week, when, wham! It hit me hard on Thursday and I had to cancel all lessons for Thursday and Friday. Basically, I was in bed for both days all day and all night long. I couldn't help it. I just was. I was much better on Saturday when we all went and celebrated Star's birthday with her. We went to tea at Barnes and Noble and then she came back to the house to hang out. Acer was very excited about this as he showed her all his stuff and then they played together. Calli was also happy to hang out with Star. They both really like her and they know that she really likes them. Star made us dinner too and boy was it tasty! It was vegetarian as Star is a vegetarian and it was simply wonderful. Bill had some for lunch yesterday and he said it was so good. She is a very good cook. Then I took her home and came back to go to sleep.
Sunday was just a quiet day here at home. I got things ready for teaching, I took a nap as I was still tired from the cold, and just rested a lot. I still have the endings of the cold but it is almost gone. My head is still a tad bit stuffy but I can breathe out of my nose no problem now. Thankfully, it didn't get to be a bad one, just a couple of days one. I have been lucky about that this year because last year or was it the year before? I can't remember, one of the two, I got several that were week long colds and they were miserable, simply miserable.
The other "event" that is coming up is a master class for my voice students. My friend, LaKedria is going to give a class to all my singers. I have never attended a master class so this is rather new to me too. I am so excited though because she gets invitations to teach all over the country and here she is coming to my little studio to teach my students! Talk about awesomeness! It is pretty awesome! This will be next Saturday. So far all of my students but 1 are planning to attend. I think we will all learn something good.
Pain wise, it hasn't been too too bad this week. I think the extra pain medicine in the cold medicine does help with head pain a bit. Despite the cold, I didn't get a super bad headache with it so I was happy about that. I still am having major problems with my right leg. It just gets so sore at night. I even have to get up and walk to the bathroom and back whether or not I need to use the bathroom. I have to walk that far to get the pain out of the leg so I can go back to sleep. It is very annoying and sometimes upsetting to me as it wakes me up and it hurts so much. I even have to go and get some Advil (of which I am not supposed to take because of the coumadin - but Tylenol doesn't cut it) in the middle of the night sometimes. It gets that bad. I suppose if I could take more tramadol that would help but I can only take 2 with lunch and 2 at bedtime. You would think the bedtime ones would last but they don't always. It isn't everyday that I do this but it is close to everyday. It just gets so frustrating to me. I shouldn't complain though because it could be both legs and it is only the right one but sometimes I just need to vent. I do get so tired of not sleeping through the night. Thankfully, I know I am not the only one and that I have friends that totally understand what I go through because they do too. That makes me feel so much better, knowing I am not alone in this. It is comforting know that I have friends who also are going through the same things, although I wish they weren't too.
Well, on to reading before my lone student, Isabella. She is a pianist and she is sooooo good. I love hearing her play. I have told her that I could listen to hear her play all day. She smiled and said, I don't think my hands would let me play all day. Her dad agreed with me. She is just a lovely musician who plays with such passion.
It has been a better week this week than last. I was starting to get a cold on Wednesday last week, when, wham! It hit me hard on Thursday and I had to cancel all lessons for Thursday and Friday. Basically, I was in bed for both days all day and all night long. I couldn't help it. I just was. I was much better on Saturday when we all went and celebrated Star's birthday with her. We went to tea at Barnes and Noble and then she came back to the house to hang out. Acer was very excited about this as he showed her all his stuff and then they played together. Calli was also happy to hang out with Star. They both really like her and they know that she really likes them. Star made us dinner too and boy was it tasty! It was vegetarian as Star is a vegetarian and it was simply wonderful. Bill had some for lunch yesterday and he said it was so good. She is a very good cook. Then I took her home and came back to go to sleep.
Sunday was just a quiet day here at home. I got things ready for teaching, I took a nap as I was still tired from the cold, and just rested a lot. I still have the endings of the cold but it is almost gone. My head is still a tad bit stuffy but I can breathe out of my nose no problem now. Thankfully, it didn't get to be a bad one, just a couple of days one. I have been lucky about that this year because last year or was it the year before? I can't remember, one of the two, I got several that were week long colds and they were miserable, simply miserable.
The other "event" that is coming up is a master class for my voice students. My friend, LaKedria is going to give a class to all my singers. I have never attended a master class so this is rather new to me too. I am so excited though because she gets invitations to teach all over the country and here she is coming to my little studio to teach my students! Talk about awesomeness! It is pretty awesome! This will be next Saturday. So far all of my students but 1 are planning to attend. I think we will all learn something good.
Pain wise, it hasn't been too too bad this week. I think the extra pain medicine in the cold medicine does help with head pain a bit. Despite the cold, I didn't get a super bad headache with it so I was happy about that. I still am having major problems with my right leg. It just gets so sore at night. I even have to get up and walk to the bathroom and back whether or not I need to use the bathroom. I have to walk that far to get the pain out of the leg so I can go back to sleep. It is very annoying and sometimes upsetting to me as it wakes me up and it hurts so much. I even have to go and get some Advil (of which I am not supposed to take because of the coumadin - but Tylenol doesn't cut it) in the middle of the night sometimes. It gets that bad. I suppose if I could take more tramadol that would help but I can only take 2 with lunch and 2 at bedtime. You would think the bedtime ones would last but they don't always. It isn't everyday that I do this but it is close to everyday. It just gets so frustrating to me. I shouldn't complain though because it could be both legs and it is only the right one but sometimes I just need to vent. I do get so tired of not sleeping through the night. Thankfully, I know I am not the only one and that I have friends that totally understand what I go through because they do too. That makes me feel so much better, knowing I am not alone in this. It is comforting know that I have friends who also are going through the same things, although I wish they weren't too.
Well, on to reading before my lone student, Isabella. She is a pianist and she is sooooo good. I love hearing her play. I have told her that I could listen to hear her play all day. She smiled and said, I don't think my hands would let me play all day. Her dad agreed with me. She is just a lovely musician who plays with such passion.
Sunday, March 23, 2014
Sunday 3-23
It has been an extremely quiet day. Megan slept through her planned lesson so no lessons today. She is coming tomorrow instead. Maisy and I have had the house to ourselves today. Everyone was out until Bill and Acer came home a bit ago. Heather BT and Calli will be home in a while. I have enjoyed the quiet. I have talked quite a bit with my cousin, Danielle on face book. She is about 23 or so now. Somewhere around there. We have jumped from topic to topic, that is for sure. Danielle has 2 children, Elizabeth and Myles. They are really sweet kids. Elizabeth is in first grade and Myles is 2.
I have to copy some music tomorrow for Brooke Ann and Cara. I also have to burn copies of the CD too. It won't take long. It never does. I just checked my filing cabinet and it turns out I do have 2 copies of that sheet music! I don't have to copy the music, just the CD! Whoo hoo!
I have also had to realize that at this point, I cannot look for my own dog. I don't have the money right now because I need to get new glasses and contacts. I haven't done that yet and it IS a necessity not a luxury. I have to take care of my eyes or I am in deep doodoo. So, this puts off another search for the perfect pet for me. I am glad that Heather BT shares Maisy with me. I enjoyed my day with her. Such a sweet little girl she is today. I love that dog so much and they know that.
I have the date for the spring concert, my birthday event, and the master class for singers. I am excited about these events happening. The Spring is after Easter so we have plenty of time for students to get ready for it. My birthday celebration is set and LaKedria is coming to do a vocal master class that I am very excited about. We have a very busy couple of months ahead of us! I don't mind! Not one bit!
Spring is here but it is only 27 degrees outside today so not springlike weather. It will come soon. It has too. We can't have winter all year around, that is just impossible. I just liked the 45 degree weather we had last week one day. I didn't wear my winter coat, just my hoodie one. Oh well, not much I can do about the weather.
I am a bit tired now as I got up a bit earlier than normal for Megan's lesson. I will go to bed a bit early and that will be okay. My legs are still rather sore. I don't get it. I don't know why they are so sore but they are. Maisy was on my bed this morning after I fed her because no one else was home. She does this when Heather BT or Bill are gone. She comes straight to my room. I don't mind one bit. Maisy was lying right next to me on top of the blanket while I was underneath the blanket. She was leaning up against me. She is such a sweet critter. I could hear her snore too but since I snore also, I say nothing about it. We probably sound rather funny together.
Not much planned for the evening. Just a quiet night reading before bed and having a drink of tea. My stomach has been upset at night a lot lately. I really don't know why. I have been taking Dramamine and also mylanta. Sometimes, I have had to take both. It is just so annoying the amount of medicine I have to take. One thing for this, another one for this, 2 for this, and on and on. I look forward to the day where I don't have to take so much. I am thankful that I can take the medicine, please don't get me wrong. It is just that I take 13 in the morning and 12 in the evening. It is a lot. There is just so much that is wrong with me, not just fibro. That is actually a small part of what is wrong.
Well, I think I am going to go and talk to my cousin some more before dinner.
I have to copy some music tomorrow for Brooke Ann and Cara. I also have to burn copies of the CD too. It won't take long. It never does. I just checked my filing cabinet and it turns out I do have 2 copies of that sheet music! I don't have to copy the music, just the CD! Whoo hoo!
I have also had to realize that at this point, I cannot look for my own dog. I don't have the money right now because I need to get new glasses and contacts. I haven't done that yet and it IS a necessity not a luxury. I have to take care of my eyes or I am in deep doodoo. So, this puts off another search for the perfect pet for me. I am glad that Heather BT shares Maisy with me. I enjoyed my day with her. Such a sweet little girl she is today. I love that dog so much and they know that.
I have the date for the spring concert, my birthday event, and the master class for singers. I am excited about these events happening. The Spring is after Easter so we have plenty of time for students to get ready for it. My birthday celebration is set and LaKedria is coming to do a vocal master class that I am very excited about. We have a very busy couple of months ahead of us! I don't mind! Not one bit!
Spring is here but it is only 27 degrees outside today so not springlike weather. It will come soon. It has too. We can't have winter all year around, that is just impossible. I just liked the 45 degree weather we had last week one day. I didn't wear my winter coat, just my hoodie one. Oh well, not much I can do about the weather.
I am a bit tired now as I got up a bit earlier than normal for Megan's lesson. I will go to bed a bit early and that will be okay. My legs are still rather sore. I don't get it. I don't know why they are so sore but they are. Maisy was on my bed this morning after I fed her because no one else was home. She does this when Heather BT or Bill are gone. She comes straight to my room. I don't mind one bit. Maisy was lying right next to me on top of the blanket while I was underneath the blanket. She was leaning up against me. She is such a sweet critter. I could hear her snore too but since I snore also, I say nothing about it. We probably sound rather funny together.
Not much planned for the evening. Just a quiet night reading before bed and having a drink of tea. My stomach has been upset at night a lot lately. I really don't know why. I have been taking Dramamine and also mylanta. Sometimes, I have had to take both. It is just so annoying the amount of medicine I have to take. One thing for this, another one for this, 2 for this, and on and on. I look forward to the day where I don't have to take so much. I am thankful that I can take the medicine, please don't get me wrong. It is just that I take 13 in the morning and 12 in the evening. It is a lot. There is just so much that is wrong with me, not just fibro. That is actually a small part of what is wrong.
Well, I think I am going to go and talk to my cousin some more before dinner.
Friday, March 21, 2014
hmmmmmmmm 3-21
It has been an exhausting week with bad headaches thrown in for good measure. It is officially spring and the snow is finally melting! We actually have grass again!!! I knew it was there somewhere! I am looking forward to the warmer weather. Today it is sunny out and around 40ish degrees, which is a far cry for the 18 degrees I was used to.
I got such a beautiful surprise early birthday present! Star bought me the movie Frozen!!!! I was moaning on Tuesday (the day the movie came out) that I could not buy the movie until Friday as I would not have the money until then. Well, Wednesday we went to tea and she surprised me with it! I was so excited that I was bouncing in my chair. I immediately texted Kathy, my best friend, and my housemate, Heather BT, that is how excited I was. They both texted back, Awesome. I was just so excited. This was the best thing ever. So this weekend, I am going to watch Frozen. I am not sure if the kids will be watching it with me or not, but I am watching it. I love this movie.
I have been having trouble with my legs, particularly with my right leg for a bit now. I am not sure why, I just am especially at night. I thought it was a nerve but it isn't. It isn't the side of my thigh were that nerve is, it is the shin area. Very strange to me. Very strange. My left leg isn't so bad, just the right leg. My legs and feet have been extra cold these past few days despite the warm up. At night, I have several extra blankets at the foot of my bed to combat this issue while sleeping. It seems to help a lot, thankfully. My right calf also seems to hurt an awful lot too, especially if it is touched. I wonder about blood clots since I have a blood disorder that can cause them even if I am on coumadin. But I am working on keeping them nice and toasty warm so that is all I can do.
I had my two little boys today for their lessons. Ryan and Nick. They are so sweet. Nick is 4 almost 5 and Ryan is 6 almost 7. Both boys are doing quite well. Nick is about to learn some notes on the staff while Ryan is learning to move his hands up and down the keyboard. They are the cutest boys. All my students are awesome. I asked Nick if he wanted to be in the concert and he said yes so he will be in his first concert this time. I am really glad he wants to be. His song will be short, but as he is small, that is okay. Nick will be one of the first students in the concert so that is okay. Ryan will be near the beginning too as he is small also. It is hard to believe, but my used-to-be little ones are now my middle ones. They no longer need to be in the front but in the middle of the concert. It is quite an experience watching them grow so fast and fast they do grow let me tell you. I may only see some of them once a week but they grow fast.
I am going to rest and read this evening after dinner and doing dishes. I may go up to bed earlier than usual. I do need to go to the store sometime this weekend for a few basic things, bagels, peanut butter, and a few other things but I decided I wasn't going to go tonight after all. I am too tired and I really don't want to. I know that sounds lazy, but I don't mean it to be. I am just that tired. I have one more lesson, dinner, dishes, and then reading before bed. I do get up earlier on Saturday than during the week except for every other Monday because I have a lesson at noon. I don't mind as it is only on Saturdays and I can do this. If necessary, I can take a nap after my lessons and often I do. I really like my Saturday at 12 noon student, Ally, she is a good clarinetist. We just started on high notes. Her face was so cute when she realized she wasn't actually squeaking but playing real notes. I am looking forward to tomorrows lesson to see how she is doing with them.
I have been procrastinating about starting the book club book not because I don't want to read the book, I do, but because I have a terrible memory these days so I am going to read the book closer to book club. This way, I will remember the book much better. I am reading a really good book that flips back and forth between the Esther in the Bible and modern times. It is so good. This is actually the sequel and I love it. I love to read even if I can remember books like I used to. I used to remember books so well but now, with fibro fog, it isn't so easy to remember what I have read after a few weeks. I may remember I have read it, but not what I read. That was why I ended up reading the 50 shades books 2 times. I forgot that I didn't particularly like them. They were okay, nothing like the hype of them. Definitely not something I would recommend or want to read again. Now the Anne of Green Gable books? Wow, those are simply awesome and I would definitely recommend those to anyone over the age of 11 since some of the wording is difficult to understand. There are new words for young ones to read but that is okay. You can always learn new words.
Emily will be here in about 5 or so minutes. She is such a nice little girl. I really like her. Then again, I don't have a student I don't really like. They are all good kids with something that makes each of them stand out. Emily is really coming along well with her piano playing. I am quite pleased with it. It seems that somehow during the Christmas season music she and 2 of my other students, Mary and Dan, really got their notes down pat. I don't know how or why but something clicked and they now read notes pretty easily. It is really nice to see the growth that they have made since reading notes was something that they had struggled with so much. Now it is not a struggle for them and they seemed to be enjoying playing more. I like to see that happen.
Yesterday, my friend, Candy, did my hair. She is getting back into hairdressing. Candy washed, dried, and curled my hair and I liked the way it looked. I have some cards from her and some coupons to pass out if anyone asks me about where to get hair done. I will share some of the things that she posts about her salon on my face book page to help her get some regular clientele. I hope it builds rapidly for her. Sometimes, I still have issues washing my hair because my left arm does not like to stay up that long but lately that hasn't been an issue, thankfully! I can even dry it right away, which is something I couldn't do either. The frozen shoulder seems to be unfreezing a bit or at least enough where it allows me to do what I need to do.
Well, dinner is over, kitchen is clean, dishes are in the dishwasher washing, the stove is clean, and I am ready for sleep already and it is only about 7 pm. Nighty night!
I got such a beautiful surprise early birthday present! Star bought me the movie Frozen!!!! I was moaning on Tuesday (the day the movie came out) that I could not buy the movie until Friday as I would not have the money until then. Well, Wednesday we went to tea and she surprised me with it! I was so excited that I was bouncing in my chair. I immediately texted Kathy, my best friend, and my housemate, Heather BT, that is how excited I was. They both texted back, Awesome. I was just so excited. This was the best thing ever. So this weekend, I am going to watch Frozen. I am not sure if the kids will be watching it with me or not, but I am watching it. I love this movie.
I have been having trouble with my legs, particularly with my right leg for a bit now. I am not sure why, I just am especially at night. I thought it was a nerve but it isn't. It isn't the side of my thigh were that nerve is, it is the shin area. Very strange to me. Very strange. My left leg isn't so bad, just the right leg. My legs and feet have been extra cold these past few days despite the warm up. At night, I have several extra blankets at the foot of my bed to combat this issue while sleeping. It seems to help a lot, thankfully. My right calf also seems to hurt an awful lot too, especially if it is touched. I wonder about blood clots since I have a blood disorder that can cause them even if I am on coumadin. But I am working on keeping them nice and toasty warm so that is all I can do.
I had my two little boys today for their lessons. Ryan and Nick. They are so sweet. Nick is 4 almost 5 and Ryan is 6 almost 7. Both boys are doing quite well. Nick is about to learn some notes on the staff while Ryan is learning to move his hands up and down the keyboard. They are the cutest boys. All my students are awesome. I asked Nick if he wanted to be in the concert and he said yes so he will be in his first concert this time. I am really glad he wants to be. His song will be short, but as he is small, that is okay. Nick will be one of the first students in the concert so that is okay. Ryan will be near the beginning too as he is small also. It is hard to believe, but my used-to-be little ones are now my middle ones. They no longer need to be in the front but in the middle of the concert. It is quite an experience watching them grow so fast and fast they do grow let me tell you. I may only see some of them once a week but they grow fast.
I am going to rest and read this evening after dinner and doing dishes. I may go up to bed earlier than usual. I do need to go to the store sometime this weekend for a few basic things, bagels, peanut butter, and a few other things but I decided I wasn't going to go tonight after all. I am too tired and I really don't want to. I know that sounds lazy, but I don't mean it to be. I am just that tired. I have one more lesson, dinner, dishes, and then reading before bed. I do get up earlier on Saturday than during the week except for every other Monday because I have a lesson at noon. I don't mind as it is only on Saturdays and I can do this. If necessary, I can take a nap after my lessons and often I do. I really like my Saturday at 12 noon student, Ally, she is a good clarinetist. We just started on high notes. Her face was so cute when she realized she wasn't actually squeaking but playing real notes. I am looking forward to tomorrows lesson to see how she is doing with them.
I have been procrastinating about starting the book club book not because I don't want to read the book, I do, but because I have a terrible memory these days so I am going to read the book closer to book club. This way, I will remember the book much better. I am reading a really good book that flips back and forth between the Esther in the Bible and modern times. It is so good. This is actually the sequel and I love it. I love to read even if I can remember books like I used to. I used to remember books so well but now, with fibro fog, it isn't so easy to remember what I have read after a few weeks. I may remember I have read it, but not what I read. That was why I ended up reading the 50 shades books 2 times. I forgot that I didn't particularly like them. They were okay, nothing like the hype of them. Definitely not something I would recommend or want to read again. Now the Anne of Green Gable books? Wow, those are simply awesome and I would definitely recommend those to anyone over the age of 11 since some of the wording is difficult to understand. There are new words for young ones to read but that is okay. You can always learn new words.
Emily will be here in about 5 or so minutes. She is such a nice little girl. I really like her. Then again, I don't have a student I don't really like. They are all good kids with something that makes each of them stand out. Emily is really coming along well with her piano playing. I am quite pleased with it. It seems that somehow during the Christmas season music she and 2 of my other students, Mary and Dan, really got their notes down pat. I don't know how or why but something clicked and they now read notes pretty easily. It is really nice to see the growth that they have made since reading notes was something that they had struggled with so much. Now it is not a struggle for them and they seemed to be enjoying playing more. I like to see that happen.
Yesterday, my friend, Candy, did my hair. She is getting back into hairdressing. Candy washed, dried, and curled my hair and I liked the way it looked. I have some cards from her and some coupons to pass out if anyone asks me about where to get hair done. I will share some of the things that she posts about her salon on my face book page to help her get some regular clientele. I hope it builds rapidly for her. Sometimes, I still have issues washing my hair because my left arm does not like to stay up that long but lately that hasn't been an issue, thankfully! I can even dry it right away, which is something I couldn't do either. The frozen shoulder seems to be unfreezing a bit or at least enough where it allows me to do what I need to do.
Well, dinner is over, kitchen is clean, dishes are in the dishwasher washing, the stove is clean, and I am ready for sleep already and it is only about 7 pm. Nighty night!
Tuesday, March 18, 2014
A not so good pain day 3-18
I have a terrible headache and my legs are aching horribly. I have taken my pain pills and Advil, of which I am not supposed to take but at times, I have no choice. Today would be one of those days. Maisy is right next to me for now. She divides up her time between me and Heather BT. Now she is barking at the door for some reason. Maisy is now back downstairs with Heather BT. I think it is sweet how she "checks up" on the both of us. It is almost as if she can sense when we aren't feeling too well and today, neither of us are feeling too well. Heather BT has a bad headache too today. She gets very bad migraines. I was wrong. Maisy is in the hallway between us since I am in the living room on the main floor and the other Heather is in the family room on the bottom floor. Such a goofy and beautiful dog she is. She was getting lots of love from me last night. She kept coming into my room when I was reading. I went up early because I just had one of those, I need to hide from the world days. I don't know why I get them, I just do.
Anyways, it was a beautiful weekend. Heather BT had a friend stop by after my lessons were over. We chatted up a storm and then went out to dinner. The men in the house had gone to see "Stomp" so it left us women alone. It was wonderful. We had a good time, all of us. It also left great leftovers, which I had for lunch yesterday. Sunday, we celebrated Calli's birthday. She is now 14. Her actual birthday was yesterday, St. Patrick's Day, but we celebrated it on Sunday. She had a good time. There was a party with friends and her grandmother also came. Her uncle and his fiance came for a short time. Over all, we all enjoyed lovely cake and ice cream as well as brownies. Calli received nice gifts that she loved. I got her the 3rd Anne of Green Gables movie as she is as big of a fan as I am. We love our Anne of Green Gables, she and I. It is nice to have something like that in common. One of our friends, Tasha (age 11) asked me before hand if I got her something from Anne of Green Gables, I had to say yes. Tasha said, I thought so and smiled. Even Tasha knows how much we love Anne of Green Gables. Tasha and family bought Calli and beautiful pair of sandals. They look so cute on her little feet. All in all, I would have to say it was the best weekend in a long time for me. It was very low on the anxiety and the pain, unlike today.
Today, I only have 2 lessons of which I am thankful. My other two have rescheduled for tomorrow so that is good. It is a reschedule NOT a cancellation. Their mom is not available to bring them this evening so they are coming tomorrow instead. I have Allison in about 10 minutes and Julia at 6 pm so I have an hour of rest in between my lessons. I may sit in my chair and take a small nap. I don't know. I will see how it goes after the lesson. I am also very cold in my hands, feet, and nose today. I know earlier I had gone out without a coat (I know, not the brightest thing to do) but it didn't seem so cold then but I haven't been warm since so basically, that was a very dumb idea. One that I will not be repeating in the future. I shall wait until it is in the 70s before I go without a jacket. I do have a hoodie on but that is not a coat and it is only 43 degrees out, which is much better than the less than 20 degrees we have had for the last month or so or the below zero we have had for most of December and January. It has been the coldest winter so far in many, many years. According to the weathermen, we have had more days of below zero temperatures since the 1950s. I didn't realize we have had that many days. I know the kids have had 10 snow days and some were due to the bitter cold, not the snow. For many weeks the average temp was around 10 or lower. Anyways, enough complaining about the weather, spring is coming soon.
I got my hearing aids back yesterday. I had wondered before they went to get fixed how they were working or how they were helping. Well, let me tell you!!! They do make a HUGE difference!!!! When they were being fixed for 2 weeks it was agony in the hearing department. It was awful. I am still having trouble understanding words or people at times but I will let the doctor know to see if it can be adjusted at that time again. Over all, I am pleased to have learned that they do indeed work and help me hear. It was awful for the 2 weeks without them. I found myself living in my own world more when I couldn't hear and had to force myself to pay attention to others around me. I didn't realize until those 2 weeks that I tend to live in my own world more when I can't hear as well. It was a revelation to me. Now I am back into the world around me, paying attention to everything, or so I hope I am.
I hope tomorrow is a better pain day.
Anyways, it was a beautiful weekend. Heather BT had a friend stop by after my lessons were over. We chatted up a storm and then went out to dinner. The men in the house had gone to see "Stomp" so it left us women alone. It was wonderful. We had a good time, all of us. It also left great leftovers, which I had for lunch yesterday. Sunday, we celebrated Calli's birthday. She is now 14. Her actual birthday was yesterday, St. Patrick's Day, but we celebrated it on Sunday. She had a good time. There was a party with friends and her grandmother also came. Her uncle and his fiance came for a short time. Over all, we all enjoyed lovely cake and ice cream as well as brownies. Calli received nice gifts that she loved. I got her the 3rd Anne of Green Gables movie as she is as big of a fan as I am. We love our Anne of Green Gables, she and I. It is nice to have something like that in common. One of our friends, Tasha (age 11) asked me before hand if I got her something from Anne of Green Gables, I had to say yes. Tasha said, I thought so and smiled. Even Tasha knows how much we love Anne of Green Gables. Tasha and family bought Calli and beautiful pair of sandals. They look so cute on her little feet. All in all, I would have to say it was the best weekend in a long time for me. It was very low on the anxiety and the pain, unlike today.
Today, I only have 2 lessons of which I am thankful. My other two have rescheduled for tomorrow so that is good. It is a reschedule NOT a cancellation. Their mom is not available to bring them this evening so they are coming tomorrow instead. I have Allison in about 10 minutes and Julia at 6 pm so I have an hour of rest in between my lessons. I may sit in my chair and take a small nap. I don't know. I will see how it goes after the lesson. I am also very cold in my hands, feet, and nose today. I know earlier I had gone out without a coat (I know, not the brightest thing to do) but it didn't seem so cold then but I haven't been warm since so basically, that was a very dumb idea. One that I will not be repeating in the future. I shall wait until it is in the 70s before I go without a jacket. I do have a hoodie on but that is not a coat and it is only 43 degrees out, which is much better than the less than 20 degrees we have had for the last month or so or the below zero we have had for most of December and January. It has been the coldest winter so far in many, many years. According to the weathermen, we have had more days of below zero temperatures since the 1950s. I didn't realize we have had that many days. I know the kids have had 10 snow days and some were due to the bitter cold, not the snow. For many weeks the average temp was around 10 or lower. Anyways, enough complaining about the weather, spring is coming soon.
I got my hearing aids back yesterday. I had wondered before they went to get fixed how they were working or how they were helping. Well, let me tell you!!! They do make a HUGE difference!!!! When they were being fixed for 2 weeks it was agony in the hearing department. It was awful. I am still having trouble understanding words or people at times but I will let the doctor know to see if it can be adjusted at that time again. Over all, I am pleased to have learned that they do indeed work and help me hear. It was awful for the 2 weeks without them. I found myself living in my own world more when I couldn't hear and had to force myself to pay attention to others around me. I didn't realize until those 2 weeks that I tend to live in my own world more when I can't hear as well. It was a revelation to me. Now I am back into the world around me, paying attention to everything, or so I hope I am.
I hope tomorrow is a better pain day.
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