Thursday, December 13, 2012

Day of the doctor appointment 12-13

I saw Dr. G this morning about the twitching and jerking motions of my hands.  He does not think that the problem with the hands are from the reglan medicine.  He thinks it is carpal tunnel.  He knows that I do have problems with my hands going numb so I have to have a test on Monday for it.  I am not having a good day today about it all.  My hands don't really hurt so I thought that was a symptom of carpal tunnel.

I think at this point I am just overwhelmed with everything today.  I am not done with the ornaments, almost done, but not completely.  The program is not done, although it is what I will work on next.  It is pretty easy to do.  I have all the songs listed, I just have to put them in order.  I have the program cover. Hannah drew it.  I am waiting on Natalie's picture now.  I am sure she will send it to me tomorrow.  I think I just need to go to bed early and have this awful day past me.

I hope your day has been better than mine.

Tuesday, December 11, 2012

Tuesday 12-11

It was a quietish type day.  I got up a bit later than usual today.  I was just so tired.  I hope for a better night tonight.  I have the ornaments ready to sew.  Isaac brought up my sewing machine for me so I am ready to go tomorrow after I get up.  I have the little books together and I have the ribbons ready too.

I am hoping that tomorrow the package I am waiting for will arrive.  It has gifts for Warren, Esther, and Phoenix.  I picked up Elizabeth's last week and I know what I am getting for the other two little ones.  I just have to pick up a few gift cards and then I am done.

I have an appointment with Doctor G on Thursday about the jerking motion and the twitching of my hands.  I do think that they are a side effect of the reglan especially since my friend, Joanne had the same problem with reglan.  Part of me is freaking out though.  I honestly cannot handle something else being wrong with me.  I really can't.  If it is something else, I don't know what I will do.  I just am at a loss of what to do.  I am trying to do this one step at a time, but I am so unsure about what is going on.  Lynetta said that it should stop by Monday and today is Tuesday.  I have not had the reglan since Friday and my hands are the same.  So, is this the reaction for the reglan or is this something new?  I keep getting these thoughts in my head.  I am trying to be strong and believe that it will work out, but I am so tired of having so much wrong with me.

Fibromyalgia
Arthritis
Headaches
Memory Problems
Vasculitis - 1 episode
Blood Clot in Lung
High Cholesterol
Asthma
Sleep Problems
Irritable Bowel Syndrome
Macular Degeneration both
Panic Attacks
Scoliosis surgery 12-8-83


This is the list of what is wrong with me.  I don't want anything else.

I think I am going to read or play angry birds to get my mind of this issue.  I foresee going to bed earlier than usual because I am so tired.

Sunday, December 9, 2012

A medicine side effect or a new issue? oh my!

Last week, early in the week, I noticed my right hand would jerk without me moving my hand.  It would just tremor on its own.  On Thursday, I called the tummy doctor.  I left a message for the Physician Assistant that I usually soon.  She called me back on Friday with directions to cut back on the reglan to 1 instead of 3 a day.  It seems to have helped, but not totally.  I am going to give it a couple more days before I talk to Dr. Gradolph about it.  I hope it is just a side effect from the reglan and not a new problem.  I don't think I could handle another problem.  I really don't think I can.  I know that the tremors or jerking motion can really be because of the reglan as it is something that is checked every time I see the PA.  I usually have to go in every 3 to 4 months to check on the medicine.  I have been taking reglan now for about 4 years without any problems so I am wondering why would it be an issue now?  It is just annoying.

My lovely girls are coming over to help me with the sewing.  With the issues of my hands I have had a hard time sewing.  I hope it is better since the concert is next Sunday.  I don't know why I wait to the last moment for this stuff.  I am thankful that they are coming over to help.  I think it is still really hard to sew because mom and I did it together.  She is the one who taught me to sew.  We would work on projects together a lot.  I did sew projects without her but sewing still reminds me of mom so much.  Mom loved to sew and she was really good at it.  Her tailoring skills were awesome.  She could make a suit that you would think a fancy designer created.  I was good at fancy dresses and not as good as her in the tailoring skills.  I taught Hannah, Lydia, and Natalie how to sew.  They have learned the basics although Lydia has learned how to make several other things too.  Right now, Lydia would like to be a fashion designer.  Who knows if she will or not, she has 2 more years of high school so she has plenty of time to decide what she wants to be and where she will like to go for college.  Natalie and Hannah will be 17 next week.  That just seems impossible to me.  Sarah just turned 9 this September and Lydia will be 16 in February.  How fast time flies.

Maia is doing okay after her breast cancer surgery on Tuesday.  The surgery took longer than originally planned but she is safe and sound recovering at her mom's house.  I have called a few times to see how Maia is doing.  So far, okay, no complications.

Well, I am going to read for a while before bed.  I am rather tired tonight.  The new dosage of the headache medicine does give me dry mouth.  I need to remember to get some of that biotine spray that helps with that.  I hope I remember next week.

Saturday, December 8, 2012

Thursday, Friday, Saturday 12-6, 7, 8

Thursday:

Today is another bad headache day for most of the day.  It isn't too bad tonight, but it certainly was earlier today.  I didn't think I could handle going to choir with this bad of a headache so I didn't go.  I hope tomorrow will just be the normal headache day.

Saturday:

I had 2 lessons this afternoon, Nina and Sean.  Both students are doing very well.  Nina is planning to play piano in the Christmas Recital while Sean is not.  Nina also wants to be an announcer for the recital.

After the lessons, I went and did some errands.  I did a huge Fibro Fog thing last night.  It did give me a chuckle, if you can't laugh at some of this stuff, you would go crazy.  So, I get ready to go, I have my coat on, my shoes on, and purse in hand.  I look in my pocket for my keys and they are not there.  I look in the other pocket, still no keys.  I look through my purse and no keys.  I looked on the table, the counter, any place they might be.  Finally, I looked in the door and sure enough, there are my keys.  Yeah, I forgot to remove them when I came in yesterday.  Thankfully, it was the inside garage door that I did this too so it wasn't like to the outside door.  Such a silly girl!

Calli and Heather B-T came over this evening.  She helped me with my hair and she braided my hair too.  Calli is a very helpful young lady.  Last night when Acer was finished with his lesson, he was being a bit silly and I don't remember what exactly I said, but his comment was that I am very attached to him.  It is true, I am attached to both Acer and Calli.  Acer was giggling when he said that.  Calli and I visited while she did my hair.  She is quite good at braiding and she will take it out and do it again if she thinks it isn't good.  There are days that I now forget that both are blind.  They are independent like all children that age.  Calli will be 13 on her birthday and in about a week or so, Acer will be 8.  Both are ready for the Christmas Recital.  After we finished my hair, Calli helped me to bring some dirty laundry down.  I need to get a bigger basket for my clothes.  I have the perfect size for the undie type clothes but not for the sweatshirts, t-shirts, and those type clothes.  I will try to get one next month with my monthly shopping.

I wasn't sure if my tramadol was actually helping.  I had thought that for a while.  Well, let me tell you, it does help a lot.  I ran out yesterday and forgot to go and get it refilled.  I had the new prescription of it.  Since I ran out, that means that I didn't have any last night or this morning when I got up.  Oh my, let's just say that I was super super sore.  I went to the store and got what I needed.  I have to use a scooter cart when I shop and when I got out of it to go to the car, I was so sore.  I was kind of walking really slow and I was hurting so much that a nice lady noticed and the man who was with her came and took my bags to my car.  I was very thankful.  One of the bags was rather heavy but the others weren't too bad.  I took my tramadol as soon as I got home.  It started working and I am back to the regular pain that I have everyday.  I will remember next time to take the new prescription to the pharmacy right away so that I won't forget and have to be without pain pills.  I won't be testing any of that anytime soon.

I have to work on remember that I have fruit in the house when I want something sweet.  I love the green apples that I have.  I don't have any junk food in the house.  I emptied it when I decided enough was enough with my weight.  Also, I now take a medication that makes it easy to gain weight, so I need to be even more vigilant about eating the fruit and veggies.  I picked up enough lettuce and tomatoes for the next few days for dinner.  I actually do really like salads as long as it isn't ice berg lettuce.  For some reason, that kind of lettuce gives me a tummy ache.  I like the Romaine Lettuce a lot. I can eat a whole heart of the lettuce for dinner.  I think by adding in another serving of veggies or fruit will help balance out the ease of gaining weight from the medicine.  I was not so vigilant when I was taking Lyrica.  I gained 80 pounds in 6 months on it.  It did help with the pain, but I couldn't handle the weight I was gaining.  For the last 5 or 6 years I didn't really care about my weight like I do now.  At first I didn't care because I was focused on taking care of mom.  She was my main concern.  It was very important to me that I take good care of her.  Yes, there were times when I failed taking care of her.  There were times when we both were frustrated with each other, but overall, I tried to make her life a good one.  After she passed away, I could barely function.  I was in survival mode as one of my friends told me and she was right.  I was going hour by hour.  I still miss her desperately, but most of the time I can think about her and smile.  There are days that it still physically hurts that she is gone but that is to be expected.  I am very thankful that I was the one to take care of her the last couple of years of her life.

I am going to make some pictures of her larger and put them in this awesome picture frame that I got for Christmas last year from my younger brother.

I am going to read for a bit or maybe play some angry birds game before bed.


Wednesday, December 5, 2012

Christmas Shopping! 12-5

I have been doing a bit of shopping the last few days.  Normally, I am completely done at this time but not this year.  I picked up something for Elizabeth.  I have something for Sammy, Matthew, and Jacob. I want to get something for Esther (I just have to order it), Myles, Phoenix, Jayson, and Warren.  Jayson and Warren are pretty easy to get and I do know what I want to get Myles.  I am not sure about what to get Phoenix.  She is about 15 or so months old at this point.

My cousin, Maia, had her breast cancer surgery yesterday.  She had the surgery at noon and was back at her mom's house about 8 or so.  The doctor got as much as he saw and he said it went well so that is good.  As expected she is very sore and tired.  I will probably be able to talk to her in a few days.  Obviously she really needs to rest so I won't be calling her yet.  This is step two for her in the cancer war.  Step three will be radiation.  I just know she is going to win this war.

Later today:

I just ordered the gifts for Esther, Phoenix, and Warren.  I will pick up Myles and Jayson's gifts next week.  I pretty much know what I am getting them.  The only one I can't figure out is Alicia, Kathy's daughter.  I usually am finished with getting gifts by November 1.  I really got to get back into that mode.  I look for gifts all year round and when I see something, I get it and put it away until birthdays or Christmas.

Lessons went well today.  The students are getting ready for the concert and so far several are almost ready for it.  I will start working on the order next week.  I won't actually print the program until the Friday before the concert.  This is because usually after I print the program, someone calls to change it around.  Natalie and Hannah are going to design the program covers.  They do a really good job so I expect this one will be nice too.

I am getting tired so I think I will finish my tea before heading to bed.

Tuesday, December 4, 2012

a step closer to the 21st century 12-4

I had to get a new phone today.  I did add texting to it.  Because I have to be able to call Canada, I couldn't get the iPhone 4.  It isn't a big deal but it was a nice thought.  Maybe in the future I will be able to get an iPhone but I don't really need a data plan.  I have talking and texting.  That is all I need.  I am just figuring out the phone.  I am sure I will have it down pat in a few days.

The students did really well today for their lessons.  Sammy was absent because of too much homework.  She wanted to have a make up so Sammy will be here on Friday instead.

I went and purchased the quilting batting for the students' ornaments.  I just have to cut them out and then sew then.  I picked up the ribbon and the fabric paint I need.  I always put their names on their ornaments and the year they get it.

My headaches have been the regular headaches yesterday and today.  I am thankful that they are not bad or medium bad ones right now.  I hope tomorrow is good too.  The weather here has been rather insane.  Last week a couple of days were really cold then on the weekend it got warmer.  It is still been warm.  I am not complaining because I do prefer the warmer weather, not too hot, but it is nice out temperature wise.

It is time to read a bit before bed.  I have a few errands I need to do tomorrow before lessons at 4.  I need to pick up some books on Friday for Sean's lesson on Saturday.  He is really doing well.  I am quite please with his progress.

Monday, December 3, 2012

Monday - 22 days until Christmas!!!

Are you ready for Christmas???  I am not quite ready but I will be soon.  The tree that Heather B-T gave me looks simply beautiful.  The students did such a great job, they really did.  I have had such a time with the bad headaches that to even think about decorating was too much for me.  Fortunately, my girls who decorated last year wanted to do it again along with Acer and Calli.  The kids are wonderful.  Of course all my students are awesome.  They just are.  The tree is beautiful.

Today, Rachel had her lesson.  She has been absent for a couple weeks because her grandmother was out of town.  Rachel is ready for the concert.  She played her song perfectly.  I was very pleased with it.  Rachel is ready the first who is totally ready for the concert.  I would say that Isaac is the second one to be ready as he knows his song that he is singing very well.  I am pleased about that.  My 2 little ones were very wild today.  Rahul was repeating everything I said for part of the lesson.  I seriously hate when kids do that.  I asked him several times to stop and he didn't.  His mom was there and told him to behave, which he did listen to for a bit until near the end of the lesson when he started it again.  Sammy was somewhat better but he would day dream in the middle of a song.  Yeah, definitely not the best way to end the teaching day.  Fortunately, the don't usually act this crazy during their lessons.  They are such sweet boys when they are not being too wild.  I actually don't mind a little bit of wild, just a lot.  I know small ones can't always sit still so it doesn't usually bother me when they are slightly wild but this was wayyyyyyyyy more than slightly wild.  Both boys will be singing the song that I originally wanted everyone to sing but some of my piano students are having a bit of a problem so just my singers will be singing it along with Sammy and Rahul since they know it by heart.  I was completely floored because my piano students that are older are having trouble with the song and yet, these two little ones know it by heart.  There will be my 7 singers and my two little ones.  It should be awesome.

This week is the week I am working on the students' ornaments.  I need to get the batting tomorrow.

I had an appointment with the Rheumotologist this morning.  She said my joints are doing well but the soft tissue is swelling in my hands and legs.  We talked about weight loss and the bottom line is I need to lose the weight because eventually, the joints are going to be a problem.  I know this, that is why I started really watching what I was eating.  I also am going to try using my inhaler for asthma before I exercise and see if that will help.  Also, I am adding more veggies and fruit to my meals.  I am eating them, but I want them to be the main ingredients of my meals.  This is what I have begun to do.  I also have changed from eating white bread to healthy wheat bread.  I am cutting out white rice.  This is a bit of a challenge because I love chipotle and their rice is so good.  If I go for lunch or dinner, I will be cutting out the rice and focusing on the peppers and onions, tomato salsa, black beans and a very small bit of cheese.  I really like the tomato salsa.  It is so awesome that is for sure.  I will also be giving up the chips but that won't be too bad because usually I eat them way after lunch or dinner.  They are good but not that good.  They aren't worth putting more weight on or getting diabetes, or high blood pressure or anything else associated with being overweight.  I am glad that Kathy and Heather B-T are also working on losing weight so the three of use can do this together.  I am so proud of Kathy because she has started running, which she loves to do, and has lost over 30 pounds these past few months.  Some day in the future we will both have reached our goals.  For me, it could be a couple of years process as I so much more to lose that both Heather B-T or Kathy.  Heather B-T has lost some weight too.  I did and then I gained it back.  I need to be more careful because my nighttime headache medicine can cause weight gain so I need to keep track of that.  I have been working hard on making good healthy choices.  Sometimes I do good and sometimes I don't.

Well, time to read before heading to bed.  My headache isn't so bad today.  It is just the normal everyday headache today.

Saturday, December 1, 2012

The first few days of December!!!!!!

Wow, Christmas is so close now.  It looks so far away before Thanksgiving, but now, it is almost here. I am not ready yet.  However, my house looks very festive.  The girls were here along with Calli and Acer to put up the tree and decorate the tree.  They also put other decorations in the dining room.  They did a really nice job.  I just watched as my headache was more than medium bad but less than super duper bad.  We got the tree from Heather BT.  It is about 4 to 5 feet tall and it is beautiful!  The lights that have not seen the light of day for about 10 years, actually work!!!  Yes!  Isn't that cool?  When Natalie went under the house in the crawl space, there were way more boxes under there for Christmas than I remembered.  I am glad I had her bring a lot of them up.  I have a box full of Christmas mugs.  a regular copy paper sized box.  I am going to trade out the Christmas mugs for the regular mugs.  I also need to switch the regular. everyday dishes with the Christmas dishes.  They are only on a higher up shelf in the cupboard so it isn't a big deal.  I love the Christmas stuff.  I will take pictures of the tree and the dining room tomorrow.  I am very pleased with how it looks.  It very nice of them to come over to do this for me.  They were all excited to decorate the tree and house.  All I did was to watch and relax.  Truly I have the best students.  The Muglia girls decorated my tree last year so they wanted to do it again this year.  They know along with Calli and Acer that I haven't been feeling too well this fall so to have them come and do this was awesome.  Peter and Sean emptied some of the attic a couple of weeks ago.  They did bring down some of the decorations that were in the attic.  I am not sure what is all up there, but we will look in the spring when the warmer weather comes.  The did bring down a lot of the camping supplies.  I told the boys that if the supplies were in good condition and usable, then they could have it.  They were so excited about the tents and stuff we found.  I was pleased that my tent was in very good condition and they love it.  I spent many days camping in that tent.  I know, a prissy girl who does not like to get dirty loves camping.  I know it is weird but true.

Tomorrow is an appointment with the rheumatologist.  I think it is just for a check up on medicine and the pain level of the fibro and arthritis.  I have to print out a paper that has all my medicines on it.  It is printing now.  I have a book to bring and read while I am waiting.  I really hope that I don't have to wait very long.  She is very thorough.  Dr. A likes to cover all the basis so I don't mind about the wait.  Besides, it isn't like I have to teach right away tomorrow when I am done.  I have a few lesson tomorrow.  It is a few weeks before the Christmas Recital.  I have to go and get batting tomorrow too for the ornaments for the kids.

Well, it is time to relax and read for a bit before I head off to bed.  I hope tomorrow is a better day with the everyday headache level and not above it.

Friday, November 30, 2012

The Last Day of November 11-30

I started posting on my facebook page what I was thankful for.  I saw in my news feed several of my friends taking each day of November to write what they are Thankful for.  I was a few days behind, but I started about November 5.  Some days it is super easy to think of things I am thankful for and other days, well, it was harder to think of things.  Part of the reason it was hard on some days is because I lumped together several things.

I had to use the breakthrough medicine today.  My friend, Heather B-T gave me the injection.  It hurts so much when you get the injection but boy is the relief nice though.  It brought down my bad headache to a normal headache level.  I am one thankful girl for that!  My arms are bit sorer today than usual.  I am not sure why, they just are.  I am sure that my being extra tired today is added to it.

Natalie didn't have her lesson today so that meant I had Acer, Calli, and Emily's lessons.  Emily has decided that she would like to be an announcer in the recital.

I can't believe that tomorrow is the beginning of December!  Only 25 more days until Christmas!  I have some of the gifts that I am giving but not all of them.  I will be done early next week though except for the ones I am making.  That will be done by next weekend that is my goal anyways.

I am now hooked on that angry birds game.  I particularly like the angry birds star wars version.  Yup, I am on level 31 and I love this game.  ugh, I must blame my aunt Michelle and my best friend, Kathy.  Between the two of them, I am now love that game.

Time to read a bit before I head for bed.


Thursday, November 29, 2012

Almost the last day of November 11-29

Today is a bad headache day.  It has been bad all day.  I took some pain medicine but it didn't even dent the pain today.  If it is still really bad tomorrow, I will have to try the shot.  I am afraid of needles so I am not sure if I can do this myself.  I will find out, that is for sure.  I am so tired of headaches, doctors, illnesses in general, and most of all, being tired all the time.  The new headache medicine that I take every night does help with sleep, so I don't wake up as often as i did, but it still is not a restful sleep.  I am glad that I only had 2 lessons today as it is between a medium bad and a really bad headache for most of the day.  I do plan on heading up to bed rather early.  I do hope that it will be better tomorrow when I have a few more lessons than I did today.

I am planning to cut out the ornaments tomorrow after I get the batting that I need for the insides of the ornament.  It will look like a little music book with the student's name and the year on the front of it.  I also need to get some red floss so that the ornament can be hung.

I hope your November has been a good one.  It is really hard to believe that Christmas is only 26 days away!!!!!!

Tuesday, November 27, 2012

Tuesday 11-27

I had an appointment with the neurologist today.  She "tweaked" my dosage for my medicine.  I have moved up from 100 to 150.  I tried to break the pills, but I couldn't do it.  Thankfully, I still have some left from when I had taken the 25.  I made it work so I have taken my nighttime medicine.  I hope to have some more progress with the bad headaches.  Right now, they are not as often as they used to be.  I get them 3 to 4 days a week instead 5 to 6 days a week.  Also, when I wake up with a bad headache it often goes down to the regular headache in the afternoon and sometimes it doesn't get bad again at night, but sometimes it does.  I know this is weird, but it is an improvement as before if I had a bad headache in the morning, I had it all day.

I had a few lessons this afternoon.  Bob had his today instead of yesterday since he was called into work.  Laith also had his lesson today instead of Thursday because he is busy on Thursday.  He is such a cute little guy.  He pretty much has his Little Drummer Boy down pat.  We spent the entire lesson working on it.  Laith was not really that happy about playing it several times in a row, but he did do it and by the end of the lesson, he was happy with how it sounded.  The other students are doing pretty well with their Christmas Songs too.  Overall, I think everyone will have their songs ready by the 16th. I just have to get started with their ornaments.  You know, Christmas seems so far away for so long until after Thanksgiving.  Then, it seems like it jumps right out at you!  I have 20 days to get this ready. I know I can.  Tomorrow I will be cutting out the ornaments and pinning.  I also need to get some batting but that can wait until the weekend.

Well, it is cold today.  I have noticed that if I take 2 Advil during the afternoon, my knees are better so that is what I have been doing and it does seem to help.  I am going to watch the rest of NCIS Los Angeles before reading a bit before bed.  Today is just a medium bad headache, not a super bad headache.  I hope that the new dosage starts to kick in really soon although I know it takes about 3 to 4 weeks to see if it is going to work.

RSD, Rejection Sensitive Dysphoria

  One of the hardest parts of ADHD for me is RSD.  There are so many words I have been told as far as I can remember that still go through m...