Monday, September 27, 2010

Relief has arrived!

I feel so much better today!  Tons better!  It is like a huge weight has been lifted off my shoulders.  I met with Melissa, the hospice nurse, and she spent about 4 hours here filling out papers, talking, answering questions, even giving Mom her bath since we can't have the other home care aide do it since we are now a hospice family.  It is amazing what they do, simply amazing.  I almost cried so many times today from relief.  Of everything I done and the decisions I have made, this was the best one yet.  They will be here from now until the end so how cool and great is that?  I mean, if she falls, they will be here, if she gets another infection (which will probably happen) they will be here, if I need something in the middle of the night, they will be here.  Also, Dr. G, our family doctor, is also on board with all this.  He wants to remain her doctor until the end, so really, how cool is that.  If, though, for some reason, he can't be gotten a hold of, they have their own doctors on call, so we are so covered it is unbelievable.  Also, most of her medicine is now covered.  I only have to pay for her synthroid and namenda, so I am excited about that.  They also will cover her briefs, no more shopping for briefs, they will send them to me.  The hospital bed we currently have in the living room must go back because they will be sending me one that is an airbed, specific for people like mom who have problems with skin breakdowns.  I am just so relieved over everything.  The best thing?  She said Mom has time.  She has some left.  She gave me hope too, something I haven't had in a long time.  Yes, I know Mom is dying, but she isn't going to die in the next few weeks, she has some time left.  Also, Mom can be a hospice patient indefinitely, she can be recertified over and over again until the end.  Overall, it is the best situation we can be in for this horrible situation.  Mom will still be dying day by day, but I have help in making her last days better for her.  She will be pain free and comfortable.  That is what is the best.  If Mom needs 24/7 care, they will be here and Medicare pays for all of this.  All of this.  I am so happy and grateful for this program.

The pain level for the fibro has dropped dramatically today, however, the pelvic pain is still excruciating.  I did call the doctor's office and asked for pain medicine for this.  I am hoping a prescription will be called in tomorrow for me.  We shall see.

Overall, I must say today has been the best day all summer and so far this fall.  Mom is even doing better today than she has in over a week when she went to the hospital.  She is talkative (okay, I don't understand half of what she is saying) and she even ate a whole bowl of cereal, something she couldn't do sometime.  She hasn't had much of her Ensure, but she is looking perked and talking, so something good has happened to her.

I hope your day has been as good as mine.  It has truly been one to remember, I have help with Mom.  Whatever I need for her, I can get.  I can't express how relieved I am over this whole situation.


  1. Heather- thanks for coming by for a visit. I love the papercutter and am really excited about all of the halloween cards. Not sure i want it to end. Halloween is so much more fun for me than christmas.

    after reading your post i was almost in tears. not sure if it was because i felt bad for what is going on or for the relief that i can feel in your words. unfortunately i know to well how awesome hospice is. will be thinking about you.

    please come back and visit often and stay in touch. look forward to hearing from you.


  2. Hope your Mom continues to do well. It is so hard to watch those we love have pain.

    I am a new follower on this blog and I am going to catch you on facebook also. I also have a health blog. My Journey With Candida. You might find some of my postings beneficial to you. , I would appreciate it if you could stop over and follow me back if you like my blog.

    On October 5, one of my followers will win a Halloween Apron. Thanks Terry

  3. Oh, Heather, I'm so happy for you and your mom! Knowing that you are not alone in this definitely is a GREAT feeling!! And I'm glad that you still have time with your mom. Spend those days with her like it was her last....say all you want to say to her before the end. When my mom suddenly died of kidney failure, I couldn't tell her all I wanted to tell her as she was unconscious and on a ventilator. I don't know if she heard me, I'd like to believe she did. They say hearing is the last to go. But she couldn't talk back to me. So do and say all you need to your mother. Make it count! :0)
    I hope your pelvic pain gets better. When will you hear from the ultrasound results? Have you had that yet?
    Gentle hugs to ya,

  4. thanks everyone! I will have the ultra sound tomorrow so I don't know when the results are going to be in. I am trying to get an appointment with the specialist, but so far, no luck. This pain has got to end soon.

  5. Hi Heather, you know I feel the relief you are feeling..we have dealt with Hospice and they are wonderful angels..this is going to help you and mom so much..I am so happy they are now involved:)
    Let us know how your appt goes, and hopefully your doc can get some pain relief for you:))