http://www.mastersinhealthcare.com/blog/2010/50-great-blogs-for-fibromyalgia-support/
50 Great Blogs for Fibromyalgia Support
Roughly 2% of Americans suffer from fibromyalgia, mostly women. The serious, chronic condition causes severe pain in muscles, ligaments, tendons and joints — frequently with only the slightest of stimuli — and sometimes crops up alongside other diagnoses such as irritable bowel syndrome, chronic fatigue, myofascial pain syndrome and many more. Many patients also experience cognitive issues known as "fibrofog" or "brainfog," which (in conjunction with the pain) heightens their risk of depression and anxiety issues. But those experiencing the illness as well as similar and/or comorbid illnesses do not have to wrestle the torment in silence. Support groups exist both online and off, and many have bravely taken to the internet to blog about their journeys through fibromyalgia in order to shed light on the oft-misunderstood condition. When seeking comfort and information on healthily coping with the harsh reality, make an effort to stop by these resources. They offer up almost everything a patient needs, though the research does not take the place of professional medical advice.
1.
Fibro Blog: Presented by the National Fibromyalgia Association, the Fibro Blog provides pretty much everything anyone could ever want or need on the subject at hand.
2.
Deb’s Fibromyalgia Blog: Debbie Vermilyea started her blog as a means of chronicling her experiences with fibromyalgia with the hopes of reaching out to other patients and their friends and family.
3.
Life and Fibromyalgia: Read one sufferer’s perspective on forging the most comfortable, productive life possible in spite of fibromyalgia and arthritis.
4.
Strangely Peculiar: This resource openly discusses depression, chronic pain and fibromyalgia, but provides plenty of cathartic humor as well.
5.
Fibromyalgia: Anyone diagnosed with the condition — in addition to their friends and family, of course — will certainly appreciate the detailed information and solidarity found here.
6.
FibromyWHAT?: Stop by here for support and information on spreading fibromyalgia awareness in the United States and beyond.
7.
Fibromyalgia & CFS Blog: Adrienne Dellwo heads up About.com’s highly educational blog and website on fibromyalgia and chronic fatigue syndrome.
8.
ButYouDontLookSick.com: Anyone suffering from a chronic illness — including fibromyalgia — should check out this highly supportive blog and community to discuss their lives, pain and treatment options.
9.
ChronicBabe.com: Another excellent blog, community, and general resource on chronic conditions, this time targeting women suffering from fibromyalgia, anxiety, Raynaud’s, asthma and many, many more.
10.
Fibro World: Step into the life of a mother and daughter team as they grapple with the latter’s fibromyalgia, neuralgia, migraines and chronic pain.
11.
Shira’s Fibro Fun: Most of the postings here come courtesy of YouTube and discuss a wide variety of fibromyalgia-related topics.
12.
The invisible disease, the journey of a fibromyalgia fighter: Follow one family’s progress as their mother grapples against the pain of fibromyalgia and pick up some incredible links and advice along the way.
13.
Health Matters Show: Tune in to Cinda Crawford’s podcast, blog and website for the latest news, views and advice on chronic fatigue syndrome and fibromyalgia.
14.
Counting My Spoons: This blog provides an amazing amount of both research and personal insight, making it a must-bookmark resource.
15.
Chronic Pain and Ramblings: After receiving a diagnosis of fibromyalgia, chronic fatigue, chronic myofascial pain and other conditions, Amanda Lasko turned her attention towards crafts.
16.
Fibro and Fabulous: It may not update as often as some of the others on this list, but Fibro and Fabulous proves that those with chronic conditions can still live happily and productively.
17.
How To Cope With Pain Blog: Many fibromyalgia patients turn towards this general blog by a psychiatrist for information on dealing with their perpetual physical torment both mentally and with medication.
18.
Fibromyalgia…from possible diagnosis of fibro to life beyond…: Since 2003, this blog has provided readers with a running commentary on life with fibromyalgia as well as the latest news and resources. Definitely a must-read for patients, friends and family.
19.
The Fibromyalgia Experiment: One 28-year-old opens up about her fibromyalgia, how it impacts her career and the steps she takes towards caring for financial and medical needs.
20.
Felicia Fibro: Pop by this blog for recipes, resources, and plenty of encouragement for fibromyalgia patients and their loved ones.
21.
Pain and Fibromyalgia: Most of the information offered here revolves around dealing with the chronic pain associated with the condition.
22.
Graceful Agony: Considered one of the best health and chronic illness blogs on the web, Graceful Agony comes packed with an excellent archive overflowing with valuable, relevant information.
23.
Lila Lost in the Fibro Fog: Give this blog a visit when looking for someone who utterly understands the challenges faced by fibromyalgia patients.
24.
Oh My Aches and Pains: Cancer, hepatitis C, fibromyalgia, diabetes, chronic fatigue and more collide into one very valuable pain management resource.
25.
4 Walls and a View: Not all of the entries here deal with fibromyalgia, but Dominique Small provides plenty of inspiration for anyone seeking support.
26.
Seeking Equilibrium: Rosemary Lee takes a humorous approach to existence and her condition, which seems to make her painful life that much easier to bear.
27.
Transform Your Chronic Life: Give this blog a visit when looking for information on alleviating the pain from and coping with fibromyalgia, depression, bipolar disorder, IDI and other chronic conditions.
28.
Blog & News at Fibromyalgia & Fatigue Centers Incorporated: This detailed resource peers into fibromyalgia and chronic fatigue from both a research and a highly personal perspective, with plenty of relatable patient stories to explore.
29.
Fibromyalgia — Online Support Group: The blog may not update often, but anyone suffering from fibromyalgia will greatly benefit from joining this support group and exchanging encouragement and advice with others.
30.
Chronic Connection: In spite of its sporadic posting schedule, many fibromyalgia patients still turn to Chronic Connection for support, coping and treatment tips and a few laughs.
31.
Una Vita Bella: Chronic pain and illness understandably leads to severe depression issues, and this brave blogger’s stories helps readers realize they aren’t always as alone as they feel.
32.
Sherlock’s Stuff: With a plethora of chronic conditions — including fibromyalgia — to contend with, one writer must take her personal and professional life one day at a time.
33.
My Foggy Brain: Updates may come at a slower pace than some of the other blogs listed here, but many fibromyalgia sufferers still turn to it for support and advice.
34.
Fibromyalgia Group Diaries: A plethora of patients keep a collective blog as a means of coping with the various physical and mental issues associated with fibromyalgia.
35.
Mo is blogging…I think: Maureen Kaech suffers from more than just fibromyalgia, so anyone seeking solace when it comes to dealing with it on top of other conditions will find her writings of particular interest.
36.
HAVING A LIFE — Sex, Relationships and a Chronic Illness: As the title states, just because one suffers from a chronic condition such as fibromyalgia doesn’t mean he or she cannot enjoy sex and relationships — it just takes some adjustments.
37.
A New Kind of Normal: Whether suffering from fibromyalgia, endometriosis, Celiac or some other chronically painful condition, Jamee at A New Kind of Normal offers up some incredibly inspiring stories to hopefully make life a little easier.
38.
Fibromyalgia — You’re Not Alone: This online support group does feature its own communal blog, but the entire (moderately active) community is worth exploring.
39.
FibroAction: FibroAction dedicates itself to promoting awareness of fibromyalgia and related conditions in the United Kingdom and beyond.
40.
Fibromyalgia at FightingFatigue.org: Be sure to check out the rest of FightingFatigue.org for a more comprehensive glimpse at dealing with the pain, exhaustion and depression of fibromyalgia and related conditions.
41.
Daily Life with "Hidden" Chronic Illnesses: Blogger Dawn only recently received a diagnosis of fibromyalgia, but anyone suffering from a chronic condition that does not manifest itself externally can easily relate to her struggles against multiple diagnoses.
42.
Faith, Family & Fibromyalgia: For some fibromyalgia patients, religion and family may offer them a respite from the suffering caused by their illness.
43.
I Am FibroCathy’s Blog: Follow one woman’s experience with fibromyalgia and her attempts to eke out a sense of equilibrium amongst the chaos.
44.
Learning to Trust: Another blog that turns towards religion for fibromyalgia support. The solution may not work for everyone, but some readers may find it inspiring.
45.
Blogs at MyFibro.com: Multiple contributors means plenty of different perspectives on fibromyalgia experiences, treatment, opinions and other related topics.
46.
My Life with Fibro: Seek out the "fresh face of fibromyalgia on the web" for lessons in how chronic pain can lead to some surprising self-awareness and insight.
47.
Chronic in the Kitchen: Fibromyalgia patients with a flair for cooking do not have to give up their passion! These recipes are specifically designed for anyone suffering from chronic pain who still desire to cook their own meals and snacks.
48.
FibroDAZE: Kathy from Chronic in the Kitchen takes time away from her cooking to discuss her battle with fibromyalgia.
49.
Phylor’s Blog: Bookmark this inspiring blog for information on living well in spite of chronic pain. The information here benefits more than just fibromyalgia patients.
50.
Chronic Pain Journal: Chronic Pain Journal may not be exclusively about fibromyalgia, but sufferers can still benefit from all the advice and resources available here.
Very cool, Heather, you and Deb at the top of the list!
ReplyDeleteI know!!!! Isn't that cool!!! I think so!!!!!!
ReplyDeleteYou never know who is reading - and I bet you have been an inspiration to many. The way you took care of your mom while you were having bad days yourself, had to cause many to wonder what would they do in the same situation, and was encouraging to tham
ReplyDelete